Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi all -
It is hot - hot - hot here in Houston - it's been over 95F for the last week. And humid.
Doesn't take long to start dripping with sweat.
My gardening activities a extreamly limited. Did get the lawn mowed with the help of a 42" tractor and had it edged before 10 AM today. Lot's of rest breaks and a small yard. Probably like many of you, my strength decreases with activity, so my work periods get shorter and shorter and my rest periods get longer and longer until I'm Done.
Tomorrow is another day and come early am will start to water the grass and landscaping so it doesn't die.
Anyway - thankful for our A/C and ice.
Scott :-)
When I first had MG and it wasn't yet responding very well to prednisone, I used a lot of Mestinon. I tried to take enough to let me do some work.
I remember helping set up the tables and displays for our local rock club in July in the 80s F and bringing along a second shirt to change from the Mestinon sweat, always having deodorant in the car and wet wipes to clean up after any work. Always an extra shirt in the car.
My Mestinon prescription was "as needed" up to 8 per day and sometimes to function I took one every 2 hours. It did make it so I could do stuff, but boy it sure amplified the hot weather perspiration!
I talked to my doctor this year about MG returning. She says that although I have been in remission now since 2013, I really can never be sure it won't come back, and in most cases it does, but some remissions have lasted 20 years and a few never returned. I turn 75 soon, and maybe will be lucky. Having won the lottery so far, I try to spend each day doing things that may be taken away in the future.
I have thought about getting a test for MG antibodies, but my neuro says almost surely they will show up and what matters are the symptoms, not the test results.
Good Luck
Russ