Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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catladyme2 07/21/2011

This summer it has been unusually oppressive here in Wisconsin, and many other states. Yesterday it was 95 degrees with a dew point in the low 80"s, heat index of 110. This has lasted for over a week now. How do you people in the South deal with this for months at a time? I feel like I can't even leave my air conditioned house. I go outside and can hardly breathe. I get so weak I feel like I'm going to melt. Luckily, I got in for a Plasma treatment yesterday. My apheresis nurse, Michelle, is such a sweetie she had to juggle her schedule around to get me in. I'm feeling much better now. Thank God for all the wonderful Doctors and Nurses I have. I am so fortunate to be treated so special. ( I usually have PLEX every 4 - 6 weeks and it was only 3 weeks since my last treatment.) Michelle and I have become very good friends over the years. She has done my treatment from the start and I was her first patient. Bless you Michelle!

Wishing you Strength.
Gail

catladyme2 07/21/2011

I meant to say ... I was her first plasmapherises patient.

deleted_user 07/21/2011

Hot weather is difficult for mg. My daughter has mg and when it is like this she has to stay in the house. We have had actual temperature of 100+ for 18 straight days. She is struggling more than usual.

adamrach 07/21/2011

The heat always affects me and the MG. I hate it. Can't wait till fall.

deleted_user 07/21/2011

Me also.

newmugg 07/23/2011

Welcome to my world---the indoor by the air conditioner world. Cathi found a cooling vest that helps when outdoors. The heat in Tx is awful with no end in sight. The only saving grace for most of us Texans is that we are experiencing an extreme drought so the humidity is low.
I am receiving plasmapheresis every week due to the heat. Hopefully I will be able to spread it out if and when it cools off. I am just returning from 7 days in the cool Colorado mountains (sitting in the Denver airport as I type). It was heavenly! I will have actually gone 11 days between treatments this time. I think in cooler weather I could go a full 2 weeks but not much longer at this point. I told my husband that I am getting my exchange Monday and not to be surprised if I head straight to the airport to find cooler weather again. I am looking at renting a place next July-Sept in a cooler climate. My neuro reminded me to make it close to a major medical facility. It was so nice to be outdoors all day and not wilting due to the heat. If any of you know of any towns I need to consider, please let me know!
(I did find a whole lodge we all could rent in Crested Butte, Co! lol)
Take care and stay cool.
~sherry

becwithkids 07/23/2011

I'm in... and NOT bringing children!!!

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