Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I am 19, I have been recently diagnosed with MG. I am a firm believer in the Christian faith and I still believe in the possibilities of miracles when things like this happen. So truthfully this is why It is hard for me to accept. But I look at MG, as a thorn in my side, something I have to deal with. I was recently diagnosed back in June of 2016, and it is now only the 7 of August, and I am now fully processing everything. I have already had a flare. I love my Neurologist, she is extremely helpful. I had symptoms for a while before being diagnosed. MG effects almost my entire bodily function severely, my Neurologist called me "lucky". I do not feel it, but I hate seeming un grateful that GOD preserved me, because it took a while to get treatment for me. I could not do anything any longer on my own, at night I would stop breathing and my younger sister of age 18 and my niece of age 6 nephew of age 5 and elderly father would just stand over me, because, none of us were sure of what to do. I would cough excessively out of no where and it felt terrible. I would hate to put my family through that, should I have another flare. I was in and out of the hospital without much support. All my family could ask was how I feel, because we did not know what to do. I did not feel understood, and I did not expect to feel understood, but I am happy they tried. I still can't see it through their eyes though.
Sending hugs your way
Flutebell (my photo shows me playing a handbell solo at church once we discovered the wonders of Mestinon! )
also ik my levels deplete faster even with a reg diet, how does someone like me increase there magnesium potassium hemoglobin and other vitals and vitamins in a diet?
MG is a difficult disease to get diagnosed, and can be slow for treatment to work. However, most folks find a treatment that works and do get on with their lives, although sometimes it takes a while for this to get figured out.
The forum here is weighted with folks who are new and those who have many complicating factors making their treatment difficult. Most of the hundreds of folks who have come here, learned about MG, found reasonably successful treatment are gone from the site and on with living their lives.
So, be optimistic; follow your neuro's guidelines, and learn as much as you can about MG so you know what is going on. There are many reputable web sites with good information including the Myathenia Gravis foundation and Mayo Clinic and others. I found with more understanding of MG, I could deal with it better.
Good Luck, Russ