Often I will feel like I am walking chest deep in water and when super fatigued it feels like I am also fighting against the current. Is that the sort of heaviness you are talking about? I feel it most when I am trying to go up a flight of stairs, or when my mestinon is due or if I have been pushing it, like I did yesterdaytoday, I feel it. When I get like that, I rest.

I feel like I am in 5 times the gravity

Yes, the heaviness is exactly as you describe it, sometimes it feels like I'm going to be pulled into the floor. I have been trying to rest but worry that I will get weaker from resting to much. Does anyone know how to know when you are doing to much or to little?

I agree with Deb, this is exactly how mg makes me feel, rest is the best when this happens. My good friends can see it happening to me, they tell me I look like I'm "walking slowly", sometimes I feel like I'm in slow motion all day from it...

Welcome to the site..So glad your here..You will find much help and support..I just joined about a month ago and sooo glad I did..I agree with the rest i have same issue alot with the heaviness in legs and arms especially in the am when I get up..I try to take a walk as much as possible..It does help for me..Even 20 mins every other day seems to help..Weather been so bad here have missed alot of the walks but try as much as possible..I dont take the mestinon just the prednisone as of now...And also having some stomache issues but still try and exercise as much as possible..Start slow...Good luck and again welcome...

Yes, absolutely! I describe it as having the lead dentist blanket (the one that they used for X-rays ) while walking through two feet of wet snow. It's better now, as I believe my ivig therapy, cellcept and 2012 thymectomy are kicking in. Hang in there...I know when it "hits" I try to rest.
Wellness,

tCndy, nope you are write with your gut instinct but I too am overweight mostly after MG & it made no difference on how heavy it/I felt. Sure we can all agree less weight is better in general. But dont be fooled by strictly loosing weight for MG, like other great post hv said ....when you get that 1st onset of weighted down / heaviness its a sign to stop & rest; probably more likely than you would like:)) xo's your hanging in there great!!! MeL

Hi tCndy! Welcome! Sorry that you have the need, to be here.
This is a great group of people, full of help & tips!

Heaviness. Yes. Very typical. When the MG symptoms are flaring, I have always felt as if I'm struggling through quicksand.

Take it easy. When you can, daily exercise is helpful. But not so - that it pushes you to exhaustion. Reduce both physical & mental stress. Try very hard to get both quality rest breaks, and quality sleep. It's also very important to have an experienced Neurologist, who sees MG patients regularly. The more MG patients a neurologist has - the better your treatment will be.
Hang in there - Ross

Hello, and welcome to the group. Yes, I sometimes feel exactly as you have described, as if wearing a lead suit.

Good way to describe it. Sometimes I am "glued to the sofa"!

Thanks to all who responded. I am looking forward to being part of such a supportive group of people.

Without a doubt there are times when I'm walking or going up and down a ladder at work and feel like i have cement shoes on a real nightmare especially if it starts early in the day..makes for a long , real long day.