Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi!
I was diagnosed in Sept 2016 with MG. Going in for a thymectomy in January. I am currently on Mestonin for symtoms but struggling to take it with the side effects- I am trying to find a balance but it is really challenging. My question is regarding HEARING- does anyone else have any weird sensations happening with their hearing when their symptoms are flaring?
Can MG affect this? Its like when you are sick with a cold and your ears sometimes feel blocked a bit, that is how I would describe it, comes and goes. Does anyone else experience this?
Two research papers
https://www.ncbi.nlm.nih.gov/pubmed/16367899 (It is clear that MG disease progression is associated with irreversible cochlear damage.)
https://www.researchgate.net/profile/Massimo_Ralli/publication/309617039_Relationship_between_hearing_function_and_myasthenia_gravis_A_contemporary_review/links/5825fe6308aeb45b5892cf79.pdf?origin=publication_list
The second paper says MG patients should have hearing tests regularly to see if they are having problems. Untreated (i.e. treated with only mestinon) people are more likely to have this problem as it is the ACHR receptors on the "hairs" involved in hearing that are being destroyed -- permanently.
Talk to your neuro, have a hearing test, and make sure the neuro understands that untreated MG can cause permanent hearing problems.
Good Luck
This disease really affects everything ughhh!
https://www.dailystrength.org/group/myasthenia-gravis/discussion/mg-amp-hearing-loss