Hi. I am sorry about your POTS being yet another thing to limit your activity. I am obsessed with keeping "marathon weight" and have done so by restricting, restricting, restricting. It is no fun. I try to not think about denying myself but instead think of making healthy choices. I know this is not an encouraging answer, but it is what I do. Take care! Hope you find a solution.

Carly, I am so with you! I have gained 25lbs. in a year and a half. This last year I can't even make it to the beach. I used to walk in waist high water parallel to the shoreline. Now I can't even do that. The diet too is a problem. Meat smells bad to me, I can't chew or digest so many healthy foods.

It doesn't help that I have tooth loss because of other autoimmune issues. I did start making a smoothie by blending spinach with water and freezing it in an ice cube tray. Then I added frozen bananas, fresh pineapple and a slice of orange without the peal. That way I only needed a blender, not a food processor. Because the spinach and bananas can be frozen days before, the actual putting the drink together was quick.

I found this web site on pinterest about how to freeze fruits and vegetables. http://www.designmom.com/2013/05/living-well-11-secrets-to-properly-freezing-produce/

Here's to our somehow eating healthier despite MG!
~Marina

I never thought I would be able to lose weight without exercising but I have managed to lose 6 kg. My GP asked if I would like to see a dietician because my sugar levels were slightly high and with his healthy eating I have lost weight, by cutting out sugars, having a lot of homemade soup and plenty of vegetables.
L

I had an appointment with my neurologist yesterday, asking about weight gain. I have gained 9 pounds in 3 weeks! WTF? The only thing I have done differently is started avoiding gluten. I'm avoiding processed stuff and eating meat and nuts, veggies, and fruit. Plus some rice. Strange, I think. I only take mestinon, glycopyrrolate, wellbutrin, fish oil, and vitamin D. I haven't taken steroids yet. Have any of you experienced weight gain with mestinon?

Erikavt, MG will make you gain if you cannot exercise. Prednisone itself will make you gain, but it will also allow exercise. I cannot imagine getting by on only Mestinon, though my steroid is methylprednisolone. It is not what people like to hear, but if you aren't exercising you really do not need much food. My runner friends and I will look at a doughnut and say, "There's 4 miles". It is sad how little we need when we don't exercise, and I have found it very difficult to reduce to what my body actually needs to do, well, almost nothing.