Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

1,709 Members

7,414 Posts

0 Online

krbunn 10/02/2012

Back in Vanderbilt for 5 days of Plasma Exchange.

deleted_user 10/02/2012

How are you feeling? What got you to be an inpatient? Will be thinking about you.
Mary

txkiki53 10/02/2012

Hey Kerry,
thinking about you this week. I go again on Friday for plex, I go every 2 weeks.
take care
Annette

mgadvocate 10/02/2012

Kerry,

Hope you get good results.
Take care.

Bruce

angepugin 10/03/2012

Wishing you strength Kerry! Thinking of you! Ange

deleted_user 10/03/2012

Hope things go well for you

Kimber71 10/03/2012

best wishes!

adamrach 10/03/2012

Praying for you.

Bamboolilly 10/03/2012

All the best to you.

cgreens 10/03/2012

You can count on me for support Kerry!

You were here for me in the beginning. Your videos were inspiring.

You are inspiring. Look forward to hearing good news!

TJ

jeanniea 10/04/2012

Sorry you are having a rough time again but glad they are giving you proper attention.

Will keep you in my thoughts.

Jeannie

krbunn 10/04/2012

I am in Vanderbilt and doing OK from the plasma exchange. I have had a 400% exchange in the first three days and will have two more 100% exchanges Friday and Saturday. That is five exchanges in five days.

I do inpatient exchanges because PLEX is so hard on me. I have tried outpatient PLEX (twice of month and weekly) but it was not as effective at controlling my MG. Five days straight is the most effective for me. But, it is really hard on your body.

My autonomic systems has been giving me real problems. My BP has been as high as 210/117 and as low as 106/35. My pulse has been between 137 and 41. That is not fun. I am on a heart monitor and having orthostatic BP testing every eight hours. I will have more autonomic system testing in the near future.

My small fiber neuropathy, breathing issues, BP, heart rate, and gastroparesis issues, and some other conditions all point to Dysautonomia.

Thanks again for the prayers and support.

We should be home from the hospital late Saturday.

--Kerry

deleted_user 10/04/2012

Glad they are all working with you to get you to a better state. I am sure you feel terrible when you autonomic system is all out of wack. Best of luck to you.

Joe-Fodor 10/04/2012

I had to look up Dysautonomia -- I guess one of the signs is salt cravings, and one of the treatments is eating lots of salty food!

I am so glad to see you back on the board -- by next week you will be your old self again. You have such a complex case, you could probably pass the medical boards with all the knowledge you've acquired. ~Joe

DebbieF777 10/04/2012

Kerry, get strong! I am praying.

Interesting about the Dysautonomia, as I am experiencing the B.P.and heart rate swings. Blood sugar swings too, though

larissam 10/04/2012

Wishing you well Kerry.
Thank you for keeping us well informed and educated!
Sunday will soon be here.
Larissa

Join the Conversation