Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

1,709 Members

7,414 Posts

0 Online

drakeford1968 09/06/2011

Do anyone has fluid building up from prednisone ? And what can be done about it?

judithwilson 09/06/2011

How much is your daiy dose of prednisone? I wad a lot of water retension when
my dose was over 20 mgs. You could see it in my face(moon face)
They say drinking a lot of water and cutting down on salt helps. The good news is, once you are off pred. It goes away In april I was on 60mg and my weight shot up to 148. I am now on 5 mgs. Now I weigh 125 and can fit into all my clothes again!

Judith

annkemp 09/06/2011

Drinking water and high protien and veggies works for me but I need to work harder at sticking to it. I am gaining so much weight on the pregnisone. I may have to get the food out of the house if I continue to want to eat everything.My chipmunk face seems to improve if I drink water.

deleted_user 09/06/2011

I've been noticing over the past week that my face is getting poofier. The only good side to this is it's smoothing out the wrinkles! lol afraid to see what happens if they lower my dose of prednisone.

annkemp 09/06/2011

hahaha

deleted_user 09/06/2011

I guess there is a benefit to Prednisone-less wrinkles!!!! Gotta keep laughing!
deb

txkiki53 09/06/2011

yep... wrinkle free here.... lol

deleted_user 09/06/2011

i notice in my lil girls face her being on it has made her gain weight considering before she was diagnosed she was failure to thrive and now her gi specialist says i need to not feed her alot honestly she isnt over weight you can just tell she gained a tad bit from before she got diagnosed and now her face looks a lil fuller

stuartsmom 09/07/2011

I limit fluids around bedtime, or I wake up with hugely swollen eyelids that look like I've been on a three day drinking binge! Here's a question for you all: have you noticed changes in straight hair curling on prednisone? I've had fly-away straight hair all my life and after a year on pred., it's coming in curly all around the edges. I mean spiral curls curly! It's not grey hair, which I know can change in texture, and don't think it's due to hormones. Anyone else go from straight to curly or vice versa?

judithwilson 09/07/2011

stuart's mom,
that's so funny that you mentioned that. I was on pred for 2 years and my hair has gotten fuller and really curly. I have always heard the opposite about pred ( that your hair gets thinner) I even asked my neuro,but she said she had never heard of that happening. Now that I am getting off pred, I wonder if I'll go back to straight thin hair!

annkemp 09/07/2011

That is absalutely crazy
my once thick hair is now thinner and dryer and harder to manage and yucky-ier ha
just like our disease
CRAZY and unpredictable

Join the Conversation