After 3 years of being told I had anxiety, depression, chronic pain, a conversion disorder, chronic fatigue... I now know I have Ehlers Danos Syndrome - most likely hypermobility type but still waiting for genetic testing to rule out classic) Which explained pain since childhood, shifting pelvis, spine and and shoulders, frequent falls due to ankles giving out, stetch marks since early teens as well as being very flexible. Most of which too was always blamed on my being depressed, anxious and too sensitive to pain. The double vision and progressive muscle weakness that began in winter 2015 and responded amazingly to mestinon (but was not MG due to my being depressed, anxious, my eyelids not drooping properly and everyone knows there is no pain with MG)  is most likely MG... Last neuro I saw said he could not say it was MG but could not say it was not MG. So he will treat me for MG. He is supposed to be the best in the city. And he said something that made me cry - He did not want office notes from other neuros only test results because he makes his own assessment!!!  He said it seemed something else was going on that made clear cut dx based on symptoms difficult. And the EDS explains that. 

I have constant muscle, joint, nerve, skin.. pain. I have always had pain. Even as a young child my parents brought me to various doctors because of my pain. When I was 4 or 5 it was mainly foot, ankle and calf pain at night. As I got older it was low back, hips, shoulders, neck... headaches... But I was active, strong, worked fulltime, had energy - I still had pain but it only flaired beyond my baseline ( which varied day to day and body part) off and on. When it did I first found help with a chiro. then ortho... adjustments stopped working so then MRIs and steriod injections... My spine was a mess but there was no one thing that explained my pain. So it was called chronic pain and maybe fibromyalgia. But in all the years I was never dx'd with fibromyalgia because my symtoms really did not fit. I now know that my joints shift - luckily they do not fully dislocate - except ankles... But it hurts and it is a difficult pain to describe. Its joint, muscle, nerve... Some days my left shoulder blade hangs too low and sticks out at a funny angle or when I lay down - flat - I notice my left rib cage sticks up about 3 inches higher than my right. My right hip/groin constantly hurts. My right hip is higher than my left - the space between the end of my ribs and my hip bone is disappears at times. I found out it is called and upslip. Tried a SI joint injection that did reduce the pain.  The slight curves in my spine change. 

So all these years my muscles where providing extra support to hold my joints togther. My cartilage, ligaments.... are all weak and too stretchy. And then my muscles started getting weak for some unknown reason that mestinon helped... My muscles tried and became knotted and tight. Over these 3 years PT keep telling me the knots in my neck were from my muscles trying to stablize my head. In my calves - the spasms were from the muscles used to lift your foot - forearms the same - muscles used to move your hands... I remember telling my then PCP in summer 2015 that my diaphram felt like I had done 50 sit ups the day before but all I was doing was breathing. (silly, anxious me) 

The GI issues I have (and have had off and on throughout my life) are also likely connected to EDS. That diagnosis explained so much about my life - my mothers and most importantly her sister. My aunt with chronic pain, GI issues her whole life without answers or help. 

One neuro about 2 years ago told me I had a conversion disorder. I asked her then what were the small lumps I had devloped under my skin over my body during the past few years. She felt my forearm - made a weird face and said nothing. The multiple hard lumps she felt never made it into her office note. I have since had a biopsy and it is fat. The layer of skin above the fat layer is weak and fat has herniated upwards. Weird but not really noticable and not on my neck or face. But it seems to hurt sometimes. 

So although I diagree with the neuros who have told me "there is no pain with MG" - If you have a history of pain and it seems to have gone above your usual tolerable baseline as your muscles have become more weak - maybe something else is going on. And if you get flagged as anxious, depressed, attention seeking, too sensitive... Never give up!