Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hello:
Does anyone experience fasciculations (twitching) and cramps? If so, has anything helped with the cramping? I'm on a moderate dose of Mestinon (60 mg 4x a day) so it doesn 't seem like it would cause a problem. I fasciculate at random times but also after using muscles - after sneezing or coughing many of the muscles around my ribcage twitch. I counted 70 fasciculations in one hour last night but don't twitch as much as that every hour of the day.
The cramping was relieved at first by stretching, but now the stretching just causes other muscles to cramp. So if I walk to ease a foot cramp, my toes start cramping.
Any advice or commiseration appreciated,
Rhonda
Does anyone experience fasciculations (twitching) and cramps? If so, has anything helped with the cramping? I'm on a moderate dose of Mestinon (60 mg 4x a day) so it doesn 't seem like it would cause a problem. I fasciculate at random times but also after using muscles - after sneezing or coughing many of the muscles around my ribcage twitch. I counted 70 fasciculations in one hour last night but don't twitch as much as that every hour of the day.
The cramping was relieved at first by stretching, but now the stretching just causes other muscles to cramp. So if I walk to ease a foot cramp, my toes start cramping.
Any advice or commiseration appreciated,
Rhonda
I take 540mg mestinon per day (had to get out the calculator for that one). The fasciculations don't seem related to when I take the mestinon. Like B said, sometimes they increase as my dose wears off. Makes you wonder.
So glad that is working for you. In general medications should be taken exactly as prescribed, but doctors don't seem to know that we have this much trouble with cramping with changing blood levels of medication. For me the bigger the drop, the worse the cramping, so I don't do well with Timespan since it wears off before I would usually awaken, and I certainly awaken unusually when that 180 drops off. b.