Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Familiar path

drakeford1968
drakeford1968
Lately some issue has occurred . My speech slur , tongue get weaker when eating and talking ( paralysis ) , double vision , Eyes not focusing , losing balance , hard to breathe laying on my back , smile comes and goes . The symptoms seem to be progressing ever week .
Ok what's going on. Is the path back to a ventilator .
annkemp
annkemp
What is your treatment at this point?
annkemp
annkemp
Have you called your neuro?
drakeford1968
drakeford1968
Yes it's hard to get in touch with him.
snowbeltfolkie
snowbeltfolkie
Hope you hear from your Neuro soon.
And that you quickly get additional help.
Thinking of you - Ross
annkemp
annkemp
You are playing with fire my friend.
If I was you I would head to er of hospital where your neuro is.
I would head this problem off before it is too bad to fix .
drakeford1968
drakeford1968
My doctor office called and told me to go to the ER . As always the same old things . You are ok . Your doctor call and said for you to make a app with him.
MaureenNY
MaureenNY
Seriously? They can't get you in when your so concerned who h we all know only makes things worse. This is exact why I switched neuros... Mine would call me back but at 6 pm... Not ok in my book...I hope your day got better....
lindsayamaral
lindsayamaral
I sure hope your symptoms quiet down. Be sure to make that appointment as soon as possible. The neuro should see you right away since you went to ER! ... marina
RuffNReady
RuffNReady
It sounds like you need some aggressive treatment here. You may need a medication boost or either an IVIG or plasmapheresis treatment. Whichever is needed, get bon it immediately!!!!
Good luck and stay on the well side.
drakeford1968
drakeford1968
The doctor will not sign the order
MaureenNY
MaureenNY
Are you ok? What are they doing for you??
drakeford1968
drakeford1968
Speaking real bad and when I eat food come out my mouth . Can't feel my lips and paralysis in my tongue and smile.
judithwilson
judithwilson
This sounds serious. I suggest going to the ER
MaureenNY
MaureenNY
Yes, those kind of symptoms just don't go away on their own... best to go to the ER they will partner you with a neuro at least for the day..
judithwilson
judithwilson
Just wanted to add, you really need to find a new neuro. It's totally unacceptable the way he is treating your mg.( or rather not treating)

Please take care of yourself. I am actually having those same symptoms. I know that means I am heading for a crisis and it can happen real fast. I called my neuro yesterday and I am having home IVIG tomorrow am, with orders to head immediately to ER if things progress. I have literally laid in bed for the last 24 hours and my symptoms have not gotten any worse. I will continue to do that until tomorrow's treatment. I dread going to the hospital for treatment because I always come home with some sort of infection. But it is better than going in to a full blown crisis. I am not trying to scare you, but this is serious and I want you to be ok!

Judith