Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I understand how you're feeling. It can get really frustrating especially when people don't understand. We just really need to be strong for ourselves.
Unfortunately you are over doing it. I always get worse in the spring.
Rest my friend....A full day on the couch.....find a good movie.....
and rest up.
And think of how you would feel if someone fell. It is ok.
They all helped to keep me upright, or get me to a place of safety.
Your post reminds me how useful they really were, avoiding falls many times.
It is a frustrating thing, remembering to balance what you want to do, against what you can do.
Does Mestinon help you, do you take it? Maybe the Neuro can help, with dosages? I could never take Mestinon, due to side effects, go figure. But it's a valuable med for many here, helping many people.
Stay safe out there!
Mine is a cheapie Trac Phone, costs me an average of $5 a month. It's always with me, even just being in the yard.
http://www.wikihow.com/Stop-Thinking-that-Accepting-Help-is-a-Sign-of-Weakness
Good Luck.
Snow, I have the same problem as you sadly with Mestinon. It doesn't react well with me, and honestly made me not want to take it. I got enough odd vision as it is, and I'm used to that. It getting worse made it so I couldn't see right at all, and was more of a danger then a help. Not for the little strength it gave me. IVIG is the only thing that worked for me, and it worked great, but medicare won't cover it unless I'm dying, so yea, joy.
Rhanson, I struggle with help because of who I am as a person. I get attached to people who help, and honestly the person I asked to help me last night, it sort of happened. I'm trying to disconnect that in myself, but that is a separate thing all together. I don't like 911, or emergency staff, because around here they make a big scene. Cops, ambulances, firetrucks, all on my block. Last time I did, we had 2 cops, 1 ambulance, and 2 fire trucks show up, lights going, and when I asked if they could kill the lights as I felt embarrassed, they told me to deal with it, it is protocol. So yea, that is why I fought the two ladies on doing it. My neighbors are gabby kind of people, and I've heard whispers they think I'm a weird freak as it is, I don't need anymore bad press as it were.