Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
So, take your time, grab the rails, and watch when and where you put your feet. Things will get better if you keep from do a Jack and Jill now!
Good Luck
Please be careful and pay close attention to your symptoms.
For some reason I have not been having that problem since I went on the mestinon. Perhaps in my case it was pure muscle weakness causing it. Not sure.
Hope you figure out how to stabilize yours. The soft braces on my ankles seemed to offer a bit more stability during that time period for me.
Do not attempt stairs with something in each hand or without using a handrail. Dad fell going down, with some warning, but no ability to stop, and like Marie, I had a couple of hard outdoor falls before the Mestinon. One was a drop and roll down our 9 concrete steps with a garden knife in my pocket and mason hammer in my belt loop, worrying about my glasses all the way down. I don't even want to think about the other one, triggered by a slip on wet earth.
Recently I had a bad sprain, didn't have my full dose of Mestinon on board. We really need to have MG under good control when we are active or at least enough Mestinon to stabilize all our joints. I do Tai Chi or I think things would have been worse. Usually I have no problems with balance. b.
For the last few months I've been unable to climb the stairs without a fresh dose of mestinon. You might try timing it better, as much as an inconvenience as it is.
When I was in hospital getting (semi)diagnosed with MG, they gave me an amazing physical therapist. She got me on the stairs and taught me how to better navigate the stairs. She really impressed upon making sure my footing was solid before trying the next stair. And I go down sideways, hanging onto the railing. Sometimes going up I do one step, then lean on the wall and rest for a bit. Using a cane can be a big help, and there is a cane out there meant for stairs but I only use my regular cane to help push me up sometimes.
Do your stairs have a landing where you can place a small stool? I've done that and can rest there before attempting the last few steps, and it helps an incredible amount to rest those leg muscles or just catch my breath.