Oh boy, I'm so sorry you have to be going through this. Like you, I now have a good idea of what my "normal" MG state is. So, when other things challenge my immune system (which is already compromised by the MG), I really feel it.

I've had problems with sinus infections, seasonal allergies, and gluten allergies ; ALL have wreaked havoc with the MG, but most had an onset that was slow, and not sudden like yours.

I am not a physician, but I'm guessing that your current situation is NOT related to MG. I have never experienced anything like you've described, but am curious if your symptoms could be related to Vertigo.

DS has a good Migraine Headache site (not sure how it is now post-upgrade). Also, write down all of your questions before your appointment with your Neuro (streamline them as best possible), and don't let him/her leave until you get them all answered.

I hope you are feeling better, and please keep us posted !!

Sorry to hear you are having these episodes.
Some of the symptoms are similar to Mestinon overdose, or the side effects of a medicine. If you can try to remember if there is anything in particular that you do, eat, drink, or take before an episode, it might help find out if the cause is related to those activities.
Hope you find out what is happening

Sorry i can imagine how scary it must be with 2 little ones.are they old enough to learn er skills -safe to go to neighbors,use cell phone.?get er alert braclet you or they could push button.put ICEon cell phone. Look up on line. Er workers look cell ICE is er contacts who know your history or have data about you. Take good care. Ever been checked for seizures-mine arent grand mal but partial which im awake/alert sort of but out there

Thank you SO MUCH for your replies. I appreciate it so much, as you all know it is so difficult to have this crazy problem and try and explain it to friends or family, no one really gets it. Today is the first day I have felt normal since the last episode a week ago, well MG "normal".

As a child I had hemiparesis with migraine, it is like a silent migraine with left side paralysis, as if it is a TIA (stroke), and it was so awful. I think I'm having similar symptoms, it feels like a stroke and you have no control over it. I can't wait to see the new doc next week, I'm going into the city to a top hospital. I'm trying not to have expectations but I really just need to know what is happening to me, the unknown is what is so frightening.

I'm trying to keep a journal of what might be triggering it, but the second I feel better I want to FORGET all of it, which is completely unhelpful. I want to pretend I'm a generally healthy mom like all the other moms I hang out with, and have a couple weeks of not paying attention to symptoms. This has been a very ridiculous way to handle it all, because I've put off dealing with this for too long. I think I got so sick of all the symptom stuff and health hell after trying for years to find a diagnosis for the MG, doctor after doctor. I'm scared to death of starting all that over again. I have PTSD from it all.

Thank goodness for you guys, I know you truly understand how down we can all get at times about this stuff. I did the training for my kids with 911 etc, it was awful to have to even do it. UGH, they are 7 and 8 so old enough to handle a 911 call, and old enough to truly understand how bad it is if mommy is on the kitchen floor. The seizure thing I have to find out about. I've had the episodes before and that is exactly what I said to my friend that had to rush over to help with my kids (when they were even younger), I said I felt like I was in a seizure that wouldn't stop.

Thank you all from the bottom of my heart, will keep you posted.

:) :) :)

Glad you feel better and good luck next week. No training is bad for kids!friday daughters smoke alarm started blaring,at 6 am she took it down changed batteries but still blaring broken,7 yr old was yelling to leave house go to tree,bring cell phone,he kept pulling her and sisiters,41/2 yr old was stop drop rolling in living room. She hadnt had coffee so she was rather annoyed.but they did learn the right lessons and acted on them.good for them and everyone!!!!!!

What a great question. I was diagnosed at the end of last March and I don't know much about the disease. Haven't posted here because then I won't be in denial anymore.

Sarabay -- welcome to the group. MG is not something to ignore, so go ahead and participate here and ask questions. The group has a great deal of experience to share. When I first got MG, I didn't know anything about it, but with questions and answers and advice from the group here, was able to understand things much better.
Good Luck

Hi Sarabay, this is a great group and very supportive, I have always gotten help and reassurance and excellent advice when I need it :)

Any time I have tummy troubles, MG comes after me! My antibody production goes up, and I get wiped out. My neuro had some advice -- "don't get sick"!