Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
These are a few of the things that I have picked up on site that make a difference every day:
electric toothbrush saves your arms for other tasks and your teeth, too
don't put things away that you will need within the next 24 hours or so (this has to be modified in case of children and pets):
I keep many toiletries in a big plastic ziplock on the bathroom floor or in the tub, easy to reach without bending and if guests come, can just pick it up and put it in the bedroom cupboard.
A washcloth on the sink is a good hand towel and lighter (and less expensive than the hand towels or bath towels) easier to pitch in the laundry and fold when clean
I hang pj's up each morning and plan next day clothes each night, my laundry hamper is a cupboard with two doors, one opening into the bathroom, the other into the laundry room.
put clean dishes from the sink or the dish washer back on the table
keep commonly used items at arms level, use locks rather than put things high, if you drop the knife it is just as bad as if the child gets to it and sometimes more dangerous, the same thing goes for medications
the old corning ware was light and unbreakable (I guess some of the metal campware is also)
electric toothbrush saves your arms for other tasks and your teeth, too
don't put things away that you will need within the next 24 hours or so (this has to be modified in case of children and pets):
I keep many toiletries in a big plastic ziplock on the bathroom floor or in the tub, easy to reach without bending and if guests come, can just pick it up and put it in the bedroom cupboard.
A washcloth on the sink is a good hand towel and lighter (and less expensive than the hand towels or bath towels) easier to pitch in the laundry and fold when clean
I hang pj's up each morning and plan next day clothes each night, my laundry hamper is a cupboard with two doors, one opening into the bathroom, the other into the laundry room.
put clean dishes from the sink or the dish washer back on the table
keep commonly used items at arms level, use locks rather than put things high, if you drop the knife it is just as bad as if the child gets to it and sometimes more dangerous, the same thing goes for medications
the old corning ware was light and unbreakable (I guess some of the metal campware is also)
Can you just get my wife?
To stop putting away?
The stuff - I use all the time!
(And - she ''hides'' the stuff on me, too!)
- Ross
Rosie
Here is Bruce''s Link to the FMLA regulations, etc. (working with MG)
b.
We bought a clothes trolley at Sams Club, probably meant for motels or something. It has three large canvas bags for sorting clothes and a rail across the top for hanging them right out of the dryer. The whole thing is on wheels. It usually stays in my bedroom and we wheel it through to wash and back again.
We also have three of the industrial grade three-shelf carts that we use for everything indoors and out from sorting papers to tidying up to potting flowers to doing any kind of job. When we get tired or fed up of doing something or a job gets stopped for some reason, we just wheel them aside or into another room for a while, and pick up where we left off later. One was supposed to be for the shop, but my wife adopted it one day when she was repotting flowers.
I also bought a small workbench with a butcher-block top and added a shelf above and below that we use for the coffee pot, bread machine, etc. And, we got the stainless steel table to extend kitchen counter space to hold mixers, induction cookers, etc.
We have a rather awkwardly shaped kitchen and my wife wanted more drawer space, so I bought the largest size toolbox with the butcher block top and loads of drawers. She loves it, and I can roll it where ever she wants it to either extend the counter or expand the work area. It was a whole lot cheaper than having more cabinets installed and should still be going strong for generations to come.
All these are attractive (enough), extremely sturdy, easy to clean, and are on wheels so we can easily rearrange to suit and they easily move to vacuum. They they save a lot of lifting and carrying, and they take the urgency out of completing every task.
One of my first and most frequently used tools of this sort is my trusty set of hand trucks. I don't carry anything heavy if I don't have to.
I hope some of these ideas are useful.
Would you please get me something to help - with the brain-fog?
I drive myself nuts, getting up - to go get something I need. And sitting down again?
And there it is, exactly what I went to look for - still sitting there, at the opposite end of the house!
I feel like Bill Murray, in ''Groundhog Day!''
- Ross
Love,
Troy
http://askjan.org/media/MG.html
http://www.dol.gov/whd/fmla/
FMLA Employee Guide
http://www.dol.gov/whd/fmla/employe...
Certification of Health Care Provider for Employee's Serious Health Condition
http://www.dol.gov/whd/forms/WH-380...
Thanks Bruce!
I understand Curt is greatly missed too!