I let my breathing get so bad that I went into a crisis. I lack sleep, tired, and had chewing and swallowing difficulty. I was found unresponsive by my son. I had to be incubated. In ICU for four days. I was discharge from hospital yesterday. a total of twelve days in hospital. Be careful when it comes to your breathing. I will put you in my prayers. God bless. Cabbage7

If they don't want to do a blood test you can go online and order one up. I spent about $100 and the antibody count came back over 80. I took it to my doctor. I asked the doctor if that meant it could be 2500 or whatever, and he said yes. God bless him, my general practitioner wrote out a prescription that day and it helped. Helped a lot.

I think it was the ACh Receptor (perhaps AChR) antibody blood test. My GP said he would have ran a zillion tests before that one. He was amazed my wife diagnosed the condition and ordered that specific blood test.

Cabbage7- so glad you are back. Springer, p,ease know this can all change quickly. Be very careful. If you live where it is hot, please stay inside.
Be well,

If you do have MG I find it is important to not fight your body and get to worked up, That's the hardest for me. Just rest relax let it ride and tommorrows a new day. Hope you feel better

I feel ya Mary same has happened to me, hang in their

If you have your spell check on--a lot of us get incubated instead of intubated. Neither one is too good for us and we understand what you mean. I hope I don't have to have either.

Trying to stay out of the hospital and the hands of medical personnel that do not understand MG and won't listen sometimes becomes priority number !. But do have on hand the materials from myasthenia.org and check out the Links group for what to have on hand for emergency and hospitalization. b.

I downloaded this from Facebook and the information is absolutely correct. PRINT THIS INFORMATION AND TAKE IT WITH YOU TO THE ER!

Myasthenic Exacerbation and Crisis

Myasthenic Crisis is a term used to describe a condition where the muscles that control breathing weaken to the point that ventilation is inadequate, creating a medical emergency and requiring a respirator for assisted ventilation. This condition can happen quickly, with little or no warning and requires immediate medical emergency care. Monitoring the respiratory status should be done routinely. Observe the patient for signs of shortness of breath or increased respiratory effort. Obtaining NIF and FVC may give clues to potential problems. One distinctive characteristic of the MG patient during evaluation of respiratory strength is that the blood gas or oxygen saturation is not a good indicator of respiratory strength. Myasthenia gravis does not interfere with gas exchange itself, but the capacity of the chest muscles to support respiration.


from

Myasthenia Gravis
A Manual for the Health Care Provider

James S. Howard, Jr., M.D., Editor

Myasthenia Gravis Foundation of America, Inc.