Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi all just wondering , I am currently tapering off my prednisone sometimes (pretty rarely) I get periods of on & off double vision they don't last very long. Was wondering if that means my prednisone dosage needs to be increased ?.... Or is this normal to get while tapering ? Thanks for anyone who can help !
I would talk to the neuro, who we would expect would tell you to stop tapering for a few weeks or months and see what happens. If double vision or other MG symptoms come back, you are too low and you have learned you are probably just below the least effective dose.
I tapered and got MG symptoms back, raised the dose until they went away and then tapered again twice to try to figure out the minimum dose. Then something happened and the third taper I went to 0 with no MG returning and found I had gone into full remission.
If you are still at relatively high prednisone doses and MG symptoms return, it is likely that your neuro will suggest adding an alternate like cellcept or Imuran or ??. If you are quite low at prednisone (i.e. under 15 or so) and prednisone side effects are tolerable, you can just stay at the level that works.
Good Luck