Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I overdid, physically, a few days ago and now have some double vision for the last couple of days.
Prednisdone 10mg/day.
I have not contacted my Neuro yet. Thought I would rest and hope that the double vision goes away.
Thoughts?
Scott
When I was first tapering prednisone, I used double vision as one of the criteria to decide if I was too low on prednisone, and as I didn't want to have DV, I boosted my prednisone for a few days (i.e. from 10 mg per day to 30 mg per day) and when the double vision left began tapering again.
Everything with prednisone seems to be so slow that one never quite knows how long it takes to change symptoms.
I did find that more Mestinon sometimes improved the DV, but never was enough to get rid of it on its own.
Patching or closing one eye to get rid of the DV always seemed to me that it gave me about 1/3 of what two eyes did. A friend of mine who lost vision in one eye said that he got adjusted to it reasonably well. I think those of us who have it come and go never really accept one-eye vision when we think normal vision is just more pills away.
Good luck
Russ
Struggling to type with one eye closed and fingers not as "nimble" as usual. :-)
Been at 10mg/day for the last month or so. Having decreased from 20mg/day.
I think I am to blame for this state of mine. I am putting a full height pantry pull-out in our bathroom, I just overdid and that - did me in. I think.
I;ll keep in touch...
It's worth a try.
Extreme rest is always helpful to me when I have overdone it.
I am currently taking 10mg of prednisone/day with PLEX scheduled at ten day intervals. I usually become symptomatic, including double vision, about 2 days before my PLEx -- around day 8 of the cycle. I just wear an eyepatch and tough it out. Mestinon (120mgs these days) makes my vision less blurred, but unfortunately although it helps a bit with the DV, it is not enough to maintain single vision for any length of time. Hopefully one of the steroid-sparing immunosuppressants will allow me to stretch the time between or eliminate PlEX treatments.
Have you missed /postponed an IVIG treatment yet? I am wondering if the IVIG gave you more resilience.
- Nan
However, I am hoping that the extra rest works for you.
My last IVIG treatment was Jan 5th, 6th and 7th of this year.
I guess it is possible that the IVIG treatment lasted 14 weeks and now it's gone, but I understand the IVIG treatment lasts 3 to 4 weeks. I had been IVIGing every 8 weeks for 3 days of infusions and am really hoping that I can stop them completely. I hate them. If my experiment doesn't work then back to IVIGs.
So I took 20mg a while ago and will take 20mg more tomorrow am and maybe the next day to try to squash the DV. Then I will taper down again. Asked my bride to resurrect the 5mg tabs.
Scott
Took 20mg this morning and will continue to try to rest. Hopeful. :-)
Took 20 this AM. DV seems a bit better. I seem to always have a bit of DV though. It is manageable, no patch.
I'll keep this up for a few more days then start to wean again.
Scott
It will be interesting to see what he might say. :-)
Russ
Reduced from 20mg/day to 15 mg/day yesterday.
Russ
I will pass that along to my Neuro to get his thoughts.
Scott
Jackson
Will stay here until we see the Neuro in 2 weeks.
DV is mostly OK.