Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
So here I am still trying to juggle my meds and not succeeding once again. I was doing fine, just like before, but then I had a fall and broke my elbow and was in a longarm cast for over 6 weeks and I don't know if the stress of that contributed or not. I was only taking Prednisone when that happened (5 mg every two days) and no Mestinon. Now I am taking 15-20 mg a day of Prednisone and a couple of Mestinon a day and it helps. I am just weak; vision seems to be okay, but iffy at times, but no real double vision. I have had that and had to wear a patch for a month. I am sort of short of breath at times and just feel weak. I am hoping this new dosage of meds will start to kick in soon and I don't have to go much higher.
My question to you Russ, when you posted you took a higher dose of Prednisone so you wouldn't have the flares, how much did you take on a daily basis and did you take Mestinon as well? Thanks for your input.
sorry to hear that you are having troubles at this time
stress will be the major cause of not be able to control your mg,
also when you broke your elbow, did they give you some meds, as antibiotics, pain killers,??? that may cause you problems has they may not be compatible. with your meds
your dose of mestidone and this depend to how everybody reation to it, should be starting point of 150 to 165mgs of piridtigmine the decressiing after 10 days by 30mgs, daitly , untill you reach the minimum dose,(30mgs)
as for your prednidone you are doing ok,, decrease after another week 5 mgs. day untill you back to one every other day or every 2 days.
no matter what just control your stress, and most of the battle will be won
best of luck, (fighter)
Can’t believe that you are being advised what to take by way of medicine by the OP. You really should be able to discuss this with your neurologist. By all means, relate what you read on here, but there are some real dangers with what amounts to self-medication.
That said, both Mestinon and Prednisone are fast-acting and therefore yet another reason for you to have your doctor in the loop.
Take care
Peter
As for the meds, I know I try and decrease them as much as I can and then I get these flares, but I am contributing to some of it due to the elbow fracture. Anyway, it is a work in progress and I am going to go see my neurologist, but when I do that, he usually just tells me to increase the prednisone and Mestinon and then start to decrease it and I pay for this with a copay! I am going to see how it goes until the end of the month. I always give myself a month to see how I am doing.
The Mestinon does seem to help. This whole thing is a pain and I hate having to think about it all the time. I am not a person who likes to takes meds and really do not like doctors, especially the way things are now. Medicine is an industry and there is no real care. Oh there may be a few docs out there, but for the most part, they just give you their 15 minutes, charge you and send you out the door.
I suspect that our health system here in the UK is rather more helpful when it comes to communication? I can simply Email my consultant and be sure of an answer within a day, at most, at no cost whatsoever.
Be careful!