Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Your symptoms do sound like MG, although there are many problems that can have similar symptoms.
Usually we go to our MD and have a basic ACHR blood test. That picks up most of the folks with MG, but not all of them by seeing if we have bad antibodies in our blood. Get your regular doctor to order the test and visit a neurologist and tell the doctor about your symptoms.
I think, for most of us, MG is different from other problems in that although we have strength, we tire very quickly of the things we are trying to do. My neuro would have me grip his hands and pull against his pulling. I could do fine for a short time, but in less than a minute, my strength was gone and he could easily overpower me.
It takes time to get a neuro appointment, so ask your regular doctor to get a blood test now.
Good Luck
Russ
Yes I agree with Russ, your symptoms do sound like possible mg.
I noticed similar weakness to you at first and then my vision started to double and speech slurred.
My reg doctor did the ACHR blood tests to confirm mg and then I went on to my neuro.
So yeah get that blood test.
Good luck to you and you can get better , I was very weak less than a year ago but now I'm doing much better. There is hope!
I started taking the Mestinon last week. For the first few days, I was taking one pill per day, just in the evening, and I did see improvement in the eye symptoms. But yesterday was the first day that I took it toward the end of an active day, while I was still out and about. And about 30 minutes after taking the pill, the heaviness in my legs that I had come to take for granted, and that had been making me feel as if I couldn't bear to walk another step after a "long" day (walk to the train station, dinner with husband, one hour browsing in a bookstore, and strolling after that), simply evaporated and I felt like a new woman. I felt as if I could easily go for a jog.
I actually started crying on the way home, while I was walking with that new lightness in my step, because I realized just how much and how needlessly I had been suffering for so many months. It was simply magical to feel that I finally have a chance at getting my life back, and also maybe a bit crushing to understand that this is really happening, that yet another incurable chronic disease has pushed its way into my life and is here to stay.
So glad that this group exists, and hope to contribute as much as you all have already contributed to my understanding of what life as an MG patient will be like. Best wishes and cheers to all!
Many of us have similar stories -- I too was diagnosed as depressed and "out of shape" and sort of believed it before finally finding out MG.
Good Luck
Russ