Hi Bear - I am pretty new to all this, but the dizziness and the stomach sickness I can relate to. I have been feeling that way all day everyday. LOL
The stomach sickness for me is a side effect of the Mestinon and i usually kill it pretty quickly by chewing on a few Gravol or Dramamine. I also find that if I eat something before the mestinon it really helps with the stomach and the dizziness. I'm like a 5 year old, I can't drive a mile in the car without getting sick.
I know we are all different, but this really does help me.
Feel better soon.
Richard

Bear, I have this kind of problem when I stand up too fast and sometimes when I just look up or lift my arms above my head. I think a lot of us have wonky blood pressure problems (dysautonomia). I also have a neck problem unrelated to MG, so that may be the cause of some of my difficulties, The feeling usually goes away pretty quickly, although I often have to hang onto something or sit down abruptly when it happens. b.

Bear I to have dizziness and had bad nausea for a long time..Some of mine also was from mestinon, cant tolerate that so had to stop it..Also DRS said gall bladder was bad so that would help if got taken out....Not! Nausea not as bad but developed even worse stomache issues and now after blood tests say there may be a tumor somewhere cause have elevated seratonin levels? Sooo it goes on..Not sure what dizziness is about but still get once in a while also....I do believe most of sick stomache was from mestinon and possibly gall bladder if was really bad..But drs did take tests and showed was not functioning properly so thought would help to get out.....I would guess since you had tests it may be the meds....So hope this helps a bit and you feel better soon....Oh also i do agree the docs wanna throw another pill at ya so right now just doing prednisone...Nothing else helped just more side affects..But now have the new test coming for this high seratonin level, so on it goes...But another thing to deal with..Hang in there and god bless and feel better...

I do eat on the mestinon it takes a hour or so later I start to getting nauseas and light. I have thought it was medication but the doctors don't want to hear that. Well I go back next month to the Neurologist first then the family doctor guess the bear may come out of me after almost 3 years they are going to hear me this time. I had to have a prostate biopsy in February they actually gave me a antibiotic I was not suppose to take. I have a list in my pocket of all my medicines I take and why. Also always take a copy of everything I am on when going to the hospital. Thanks for your responses just nice to put things out there and hear from you all.

I definitely struggled with this a lot this fall. In my case, it even happened when I was just sitting comfortably, having a nice, relaxing moment. I started allowing more sodium back in my diet (had cut back for prednisone considerations) and that seems to have made some difference for me.

Hi Bear ,

I can certainly relate to some of your stomach issues however for me its a little different than my other friends who have posted . Most often it occurred with me at work where my job is physically demanding lol , like they all are not , right ?

Work conditions are always to hot or to cold and so well , nausea and abdominal muscle cramping , lots of water is our best friend.

Often , but not always talk of is similar symptoms going thru wirhdarwl and or tapering of , well you guessed it Prednisone the med we all hate to love.

Keep the faith , Don't give up, no no ..Cj

Bear!!! If the bear does not come out in you at your next appointment ..I am flying out there!!! That should be enough motivation because I am sure your lovely wife does not want two crazed mg persons around.

Please take care of yourself my friend. I worry about you.

Been fighting some nausea and neck pain. I'm living the chronic illness life..part denial part acceptance.

Huge hug! barb

Heh Bear,
Sorry, but, I agree with the rest of the MG gang. Mestinon makes your stomach feel awful (thought about using a bad word..grrr) Hate it but most of the time I feel better on it.
About the wobble, that's what I call my walking like I am drunk. I just make jokes about the bar opened early today or something stupid.
If you can't laugh at it, you'd just want to sit down and cry.
I will be 72 next week. So, I get away with saying things, ya'll young'un might not. Ooops, the ole Texan just came out.
Be well, we all are with you.
Dee

Hi bear , my good friend . I have the same problems and I suppose the meds do contribute to it , but I also feel that the eye muscles being slow to focus are a lot of the problem on the dizzyness . Weak legs I chock up to generalized MG . Walking to far or standing to long a time makes my leggs weak and if I try to push to hard breathing gets labored and shallow . It is what it is I guess . Like when I go to get parts for something and the guy at the counter says have a good day. If I was having a good day I wouldn't be getting repairs , lol Charlie

Seems to be a common thread but not sure it's meds related for me as I've had episodes of sudden intense weakness, shakiness and near collapse long before my diagnosis. What frightens me most is my daughter experiences the same occasionally.
In the past month or so I notice mild nausea, but can't pinpoint the cause.

I agree with Cj, water is our best friend. I always feel best on days I hydrate to the point that I might float away.

Hope you feel better soon. Larissa

I had vertigo when laying in bed and trying to get up. They did a VNG test and found my ear crystals were off. Just had therapy yesterday (epley maneuver) and it's almost gone! The dizziness can cause the nausea. I was real nauseous yesterday after first therapy and lasted 3 hrs, but went away. Only thing MG flared due to exertion.
Oh,the fun never ends :)
Wellness,