Im also interested in this. My past job (where i worked for over a year before resigning 4 months ago) didn't know about my condition since i chose not to disclose it to them. So i was subjected to loads of overtime work and the stress made my mg worse.

So when i get another job im planning to tell HR only when i get to the final interview. Since i would need some time off every month to go to the doctor and i would rather not work overtime a lot since it made me feel bad. On the other hand, i feel like telling them would cause discrimination in the employment process because why would they make adjustments for me when they could just hire someone who's healthy :/

My possible MG has developed over the past five years. I've had four senior managers in that time. The most recent two started seeing it affect my job with inability to carry heavy display boards or large amounts of food and drinks to events. I've also had to take 5 full days off work to travel to neighboring cities to see MG specialists. I still miss less work than a colleague with migraines and IBS. My slurring happens in the cold mornings so isn't a real problem once I warm up. . Current boss said 'Slur away! I can understand you.' My voice going hoarse is starting to be a problem but I can still be heard if I get away from the crowd. I am fortunate that my skill set is very valuable so they are glad to be flexible. I've had more problems with getting my scent accommodation followed (by often absent coworker). But I work at a University that is trying to increase its reputation for being diverse and accepting of folks with disabilities. My union has also helped me out. I may have to get more treatment soon so will work with HR and their Return to Work specialists who actually help negotiate absences from work.
Good luck figuring out what works best for you.
Flutebell

The hospital where my neuromuscular clinic is has a social worker assigned to it, and I was able to ask him questions about employment. I don't remember what he told me as it was five years ago, but you might want to ask if your hospital has one.

If you live in the United States. You might want to Google "Americans with Disabilities Act" and start your research, to see what protections you may have under the law. Also, retraining into a new field of work, if you are in the future unable to perform the work required in your present job.

It's a start for you. Sorry I do not have very much knowledge of this area. Except I know there is a act and probably many other rights for disabled people in the United States.

Good Luck to you.

In addition to the Disabilities Act I think FMLA is available through that. FMLA is the Family Medical Leave Act and is in place to protect your job and expects accommodation of employers.. You can always ask for it initially for appointment times and if you need breaks.
I'm debating it for myself but a bit reluctant since I'm still wrapping my head around the diagnosis. I'm an RN and work as a phone triage nurse, so I went to my doctor knowing how to discuss my symptoms and not being positive for antibodies. My eye symptoms are triggered when it's busy at work as I'm looking back and forth, calls are waiting, and I tend to not blink either. As I work with primarily other nurses and my supervisor is a nurse it's been okay but it's a job with high expectations and a lot of performance markers to meet. I know, though, that I could ask for leeway in things like pacing my calls to breathe more frequently, or in documentation time. And while I know they have to accommodate there may be ways around it, but most I know who've needed FMLA seem to find if you are focused on doing a good job, most managers get it.

I am posting this. It is related to your fear of losing employment. You are in the IT Field.
The Federal Government of the USA uses every occupation imaginable. Positively IT.
I am retired Federal Government. I trained a Tax Auditor once who was legally blind. He had a cane. When I put overhead images during class, I gave him the master to look at. Another, blind person answered the phones giving out tax information. I read Rulings, etc. to him and he typed them into braile. All of his tax manuals were in braile. I worked with numerous government employees who were totally deaf and communicated with sign language. One lady had BOTH Hands severed off above the wrist. She worked at my agency. Most have lost her hand in an accident as a child. The last 12 years of my Federal Employment I worked about 20 feet from a man who was paralyzed from the waste down and in a wheel chair. Hit by a drunk driver while riding his bicycle.

The Federal Government actively seeks disabled people.. Some announced are ONLY OPENED to disabled people. The web site is www.usajobs.gov The home page has a place on it to click for "Disabled Applicants"

Another benefit, with health care insurance up in the air, Federal Health Insurance Plans cover pre-existing illness. I kept my Federal Government Blue Cross Plan into Retirement. I have Medicare A, Medicare B, and Federal Blue Cross.

Once I did an audit on a lady with tremendous expenses related to Diabetes. She was smiling at me. I said "Why are you so happy?" She said: "I got hired by the Post Office last week. They cover pre-existing illnesses. So I won't have the large payments for insulin, etc. in the future." (This was back in the 1970's when insurers denied coverage for pre-existing conditions.

So I hope this post helps anyone who reads it in the future. I retired with 26 years Federal Service. With several different agencies. Federal Employees work and earn their pay. You may have heard differently, because they are used as a scape goat by politicians. Every agency I worked for looked to hiring disabled people.