I was diagnosed 2 weeks ago so I also am needing the experience and information from the rest of you folks diagnosed from in a crisis situation. never want to repeat that experience

Amigo, welcome to the group and sorry you have this pain in the ass illness. I like your attitude and you will more than likely need to stay positive as the disease progresses. Listen to your doctors and make sure you are honest with them. Don't think you can do this without their guidance. We are all here with you on this journey. Reach out anytime, we will be here.

Jim, the same for you. When you are in crisis it does suck, but you will get better with treatment. Reach out any time.

Thanks for reply wskimball. Starting IVIG in Couple weeks. Hoping I can get back to golfing and my other outdoor interest soon.

Welcome to the club! Your positive attitude will certainly go a long way to help in this journey. I was diagnosed 2 years ago. Tried IVIG - horrible side effects for not much, if any, relief. Thymmectomy - helped, I think. Have done 3 rounds of plasmapheresis- that seems to be helping quite a bit. I'm very reluctant to go on meds other than Mestinon. That's just a bit of my journey - feel free to reach out with any questions.

Seems like the diagnosis for MG is just a beginning. Since then, they have added LUPUS and Sjogrens. Dr. said its not unusual to have 3 or more immuno issues with this. Not that you can really do anything about it but it would be nice to have a little more info up front. Seems like every visit is "one more thing", as I have come to learn.
Since doctors "practice" medicine, we need to be patient, but it is difficult.

So glad to have found this group. Currently be worked up for MG but pulmonary function test, EMG, and single fibre test all normal. Symptomatic with droopy eye, blurry double vision, fatigue, and intermittent voice changes.

Followup tomorrow with neuro to discuss next steps. It's a bit scary being in limbo as well as being newly diagnosed. Thankfully, there is great support available such as this group♡

Hi, I was diagnosed with MG in June of 2016. I take Mestynon and Prednisone. I took the Prednisone for six months. Starting at 80 mg. and going down to nothing. I take 10 mg. of Cell Cept and three Mestynon a day. I was doing real well and then I worked for 8 days in a row 14 hours a day. My double vision has come back.

I am now on 40 mg. of Prednison and tritating down. Still on Cel Cept and Mestynon. I now realize I am not bullet proof and I have to pace myself.

Next week, I start a pain class where they will teach me to meditate and lower my stress. I look forward to hearing other ideas from people with MG. It is so hard because so few people have it and they know little about it. Thank you.

Going in for IVIG today. Have not read a lot of positive post on the results. curious as to how long before I start noticing an improvement. Anyone know of any WEB sites that have extensive information on MG itself and treatments? Also any thoughts on exercise? before this I was speed walking 3.5 miles every morning now Dr. says limit to 15 minutes. any thoughts or experiences would be appreciated.

Most folks are about as happy as they make up their minds to be.
- Abraham Lincoln (16th US president, 1809-1865)

I feel the IVIG in 2-3 days. As far as Exercise I’ve never been able to get back to where I was. I have had to accapt a new normal

Personally i don't know what IVIG is, i just used to take prednisone and 1 tablet of mestinon per day until i stopped 2 years ago.

Hi guys!! I am new to the group!! I have had MG since april of 2014 i was in the hospital for a month till i got going. I had a feeding tube for six months. long story short. Plasmatheresis look it up it really got me going when i was in the hospital. I take prednisone and mestinon low doses. Rest and avoid stress!!