Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi friends,
last night I had my 3rd treatment of IGg. Unfortunately I am getting my infusions starting in the evenings around 8pm b/c due to having a heck of a time getting an iv in me the first day, that is when they finally got the first one started. I guess they are supposed to be 24 hours apart and they are sticklers to that - which means I don't finish til the wee hours of the mornings. :/
I am a very hard iv stick - Over the last 3 days, I've had 6 different nurses attempt to get an iv = we got one the first night on the inside of my wrist that was horribly painful - and I have a very high tolerance of pain! Last night, because of the way it was starting to look, they went searching again, finally got another one on my other arm - but told my Dr. when she came in that if this is going to be a regular treatment for me, she would be best to look at having a medi-port put in me because there is no way I should be put through this everytime - anyone have one of these who has regular Ivig?
I have had mild side effects, to include a low grade fever (100.4). I woke this morning after my 3rd infusion and I can tell that I feel stronger.....can it happen that fast? My walk is more sure and steady. I am so thankful for that! I told my husband when I spoke to him this morning that I was going to walk the halls all day today and of course he said, uh no you're not! :)
I've got 2 more infusions to go and am so prayerful to continue feeling better!
last night I had my 3rd treatment of IGg. Unfortunately I am getting my infusions starting in the evenings around 8pm b/c due to having a heck of a time getting an iv in me the first day, that is when they finally got the first one started. I guess they are supposed to be 24 hours apart and they are sticklers to that - which means I don't finish til the wee hours of the mornings. :/
I am a very hard iv stick - Over the last 3 days, I've had 6 different nurses attempt to get an iv = we got one the first night on the inside of my wrist that was horribly painful - and I have a very high tolerance of pain! Last night, because of the way it was starting to look, they went searching again, finally got another one on my other arm - but told my Dr. when she came in that if this is going to be a regular treatment for me, she would be best to look at having a medi-port put in me because there is no way I should be put through this everytime - anyone have one of these who has regular Ivig?
I have had mild side effects, to include a low grade fever (100.4). I woke this morning after my 3rd infusion and I can tell that I feel stronger.....can it happen that fast? My walk is more sure and steady. I am so thankful for that! I told my husband when I spoke to him this morning that I was going to walk the halls all day today and of course he said, uh no you're not! :)
I've got 2 more infusions to go and am so prayerful to continue feeling better!
Good Luck
Russ
I just got a vortex port placed on 1/22 for plasmapheresis and I was surprised to find it was far less painful than I had anticipated.
Glad your Ivig is working for you.
Usually, they put you in the hospital for your first round, but it's possible to get it done at home.
It's also available subcutaneous that you can do yourself. Unfortunately, Ivig doesn't help me, so I have to do plasmapheresis.
On the very first round I had, I did improve by the third day, but then deteriorated quickly after that.
Hope you continue to feel better each day!
Don't jump into anything. It will be better.
Dee
Dee
I've only had a few people miss it in all these years. I've also received all my IVIG in that vein, too. I'm left-handed, so I get it in my right hand.
Sometimes these medical people are very proud of their sticking skills -- one guy bragged how he got a line in the vein of a week-old baby earlier that day, and then proceeded to miss my own vein three times before resorting to the "student" vein.
What was worse was being in the hospital after my thymectomy, and getting a blood transfusion, and noticing about a half hour into it that I was developing a big bruise -- the line had come out of the vien and the blood was just filling up my arm. I had a huge multicolored bruise there for a month.
~joe
@barbel, hope you are doing well, and Yay for liquid gold! Hang in there....I'm moving to 4 weeks after 2 1/2 years.
Wellness