Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Muscles & Bones
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crazy doctor

drakeford1968
drakeford1968
I SPEND A DAY AND A HALF IN ICU . MY NEUR DOCTOR SENT ME HOME WHEN OTHER DOCTOR TOLD HIM I NEEDED A FEW MORE DAY TO BE WATCHRD .
HE TOLD ME THAT IT WAS ALL IN MY HEAD LOL .THIS DOCTOR IS CRAZY , ALL THE WEAKNEES , PROBLEM SWALLOWING , EYES CROSSING, BREATHING ETC IS COMING FROM ME , HE WANTED TO GIVE ME A PILL FOR DEPRESSION LOL .
I THINK THE DOCTORS DO NOT UNDERSTAND MG .HE SAID THAT ALL OF WHAT YOU FEELING IS NOT MG . IT'S YOU AND YOU MAKING YOURSELF SICK .
judithwilson
judithwilson
time to find a new dr.
drakeford1968
drakeford1968
SO TRUE
catnap2
catnap2
No kidding. I am so sorry. These are the doctors who need to spend enough time in your shoes to experience fully the frustrations of MG along with the frustrations of dealing with doctors like themselves. Definitely time to find a doctor who knows what they are talking about.
annkemp
annkemp
Oh
I am so sorry you had to suffer throught this.
worth a letter to the hospital
Ann
billfig99
billfig99
yeah find another Doc, and make sure to let others know not to use him/her, post something up online. hope you feel better.
newmugg
newmugg
So sorry Drakeford. Shame on the doctor!

Time to call the MGFA Carolina's chapter to find a new neuro.

Phone: (877) 643-2221
Toll Free Phone: (877) MGFA-CC1
Fax: (919) 233-0461
Email: carolinas@myasthenia.org
Below is the MGFA site that has all of the Carolina chapters.

http://www.myasthenia.org/LivingwithMG/MGFAChapters/Carolinas/SupportGroups.aspx

Hope this helps:)
Peep us posted on you and take care,
~sherry
tesb
tesb
Time for a new Dr. thinking of you
deleted_user
deleted_user
ugghh good doctors can be so hard to find. (((sending find a great doctor who knows what he is doing and quickly vibes so you get what you need sooner then later)))
snowbeltfolkie
snowbeltfolkie
Many of us went thru the same thing.
We know! We're sick, as can be.
The doctors are plain lazy.
I'm sorry, but that - is what it amounts to.

it took me 4 doctors, before i found the right Neuro -
- who understood MG.
he was 110-miles away, from my home.

i too - was told i was crazy.
nope. the docs are lazy, lazy, lazy.

how could people - who spend so much time & energy -
- getting thru medical school?
how can they be so lazy - when they come out?

their answer should be:
''i don't know what's wrong with you.''
''but i'm gonna find you - someone who will figure this out.''

- Ross
mellywil
mellywil
Fires me up Drakeford, tooo many memories, wrong pills, & of course I too was just a tired & a crazy mom! Let those experiences drive you harder for the truth, & you r not crazy Drakeford!! :)) go get them, much luck to u MeLisa