Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Chroux 04/09/2011

Hi, Me again

Was wondering is cramps in the hollow of your feet is a common side effect of meds that we are on. Presently I am on Predisone and Mestinon.
I mainly get these cramps when lying down.

Nothing to bad, just a quick tug on my big toe and I can get by. But they are more frequent now and more often

Any thoughts here?

Thanks

Christo

deleted_user 04/18/2011

Did the same this weekend, Vicki. It's what keeps me alive, I think. But it's also what causes me to get up close and personal with cramps. It's not just a lack of potassium that causes them but also other electrolytes, particularly calcium. My bloodwork last week showed my calcium level too low so doc told me to take 1000mg calcium carbonate per day.

Curt

deleted_user 04/18/2011

Hi. I have not been diagnosed with MG ( been tested before and need to be tested again) but I do get those same cramps and when I lie down is when they happen the most!
I thought maybe it is my potassium levels (I have Adrenal Insufficiency) so I try to take a supplement but that does not seem to be the answer.
I am however, on prednisone...so maybe that is part of it!
Be well!

deleted_user 04/18/2011

I also have cramps in my feet. I have just received my blood test and see that my levels are normal. I can definately relate.

cgreens 04/19/2011

I agree that Curt is an MG hero with a 300 mile bike ride?

I don't even know anyone that does that, let alone poeple with MG. How long is the Tour de France?

Wow

deleted_user 04/19/2011

TJ - this is on a MOTORcycle, not a bicycle! :-) I did get the bug for two wheels from riding long distances on bicycles, but 100 miles in a day was the upper limit. One day I got so dehydrated from a long bicycle ride in the hot summer heat that I cramped up while riding, ran off the road into the ditch and contracted up into a ball. It took two hours before I could stand up enough to get myself home.

Curt

cgreens 04/19/2011

I haven't tried to ride a bike yet since MG onset. Concerned about my balance and my vision still.

Swimming this summer will be something I am looking forward to. That and just getting stronger, better, more balanced.

All the best,
TJ

deleted_user 05/09/2011

I was already on potassium because of heart meds and would get bad leg cramps when i wasn't as careful about taking it. One of my sisters & my brother get leg cramps too and luckily I never got around to trying the remedy that they swear is the best thing to relieve cramps - what is it? Quinine! This was maybe 6 months before I was diagnosised but already having symptoms for a couple of years. Thank God I didn't take it.
Pat

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