I meant to say more frequent and more painfull....

Hey Christo,
I have noticed an increase in the tendency to have foot cramps over the last few months. If I point my toes I'm likely to start a cramp in motion. It doesn't seem related to my mestinon as I vary my dose from 30 to 60mg as needed and I seem to have the cramping regardless of the dose.

yep, cramps from hell.... feet, legs hands... ugggggggg don't really think it is med related

No matter what is causing it, in my opinion it may be a lack of potassium. I find that I have never had a cramp when I stay actively eating bananas...

http://www.nutritional-supplement-educational-centre.com/symptoms-of-low-potassium.html

I read that prednisone can lower your potassium level

Yes check your Potassium. It is a chronic problem if you take Prednisone or Cellcept you should take a potassium supplements. Eat lots of Bananas and sweet potatoes

As you know I suffer from fibromygia ( I put this for the benefit of the other people that comment on this thread) I also get cramps all the time, in my legs but especially in my feet, they can last up to an hour and if out I have to sit down and massage until I can continue walking again, this sometimes is an hour later. The newsest development is that I cannot walk on my heels in the morning. I used to take a magnesium supplement, must ask my Dr about it when I see him again.

I have cramps in my feet. No prednisone. My potassium level is good as far as blood work goes. I had the foot cramps about a year before MG diagnosis.
I have also had horrible abdominal muscle spasms in the last year. I would rate the pain at a 10. I wouldn't call it a cramp, I would call it a sustained spasm across my whole abdominal area that lasts about 5 minutes....can hardly take a breath, can't move. If it lasted any longer, I would have to call an ambulance. Simply horrible. The docs can't seem to explain it when I mention it to them.
The first time it happened was when I first started mestinon, shortly after taking the dose. The other 3 times was not close to mestinon dose. The last one happened recently and started at night, in bed, with a foot cramp, then to my abdomen. It does sound metabolical doesn't it. Any ideas?
~sherry

Sherry are you eating bananas regularly or often? Sweet Potatoes were mentioned also. I only ask because I do believe the Mestinon can contribute to the cramping and may only be temporary while in the system.

But as for abdominal spasms, I cannot say. Here is something I was looking at, but it just lists causes:

http://www.buzzle.com/articles/abdominal-spasms.html

I wish us all peace in our lives.

Best wishes,

TJ

Desertpatons,

Magnesium relaxes muscles and any supplement would not be good for people with MG. There is magnesium in many foods we eat already as well.

Best wishes,

TJ

I used to get terrible cramps when I was on mestinon . I too have a form of fibromygia. The Potassium did help some. I ended up with a vibrating pad that i put under my legs. The theroy is that it improved circulation and for the most part helped me. You may want to look into renting one at a medical supply to see if helps. Those pads are expensive to buy. Fortunately I saw no benefit from Mestinon so I was able to discontinue taking it . But unfortunately Cellcept and Prednisone have a whole other set of side effects which are no fun to cope with.

I get 'em, too. Sometimes they are excrutiating. Had my regular blood workup last week and saw my doc yesterday. Calcium is low. Need to take "Caltrate." Imuran/prednisone can cause this. Explains the cramps. Eat bananas, take calcium. It gets particularly bad if I go on a 300 mile bike ride because the wind dessicates you, causing the loss of electrolytes.

Curt

i am taking mestonin and prednisone for treatment for MG. i also have cramps in my hands and feet very frequently. it is so miserable. mostly when i am in bed or doing things with my hands. if you get cramps in your legs, there is a very good juice by Minute Maid, made from pomegranite, apple and blueberries. it has stopped the legs cramps completely for me. it is very high in potassium.

I like pommi juice it does help some

Hi Christo...I get leg and foot cramps, too....mine are mostly in the mornings, but have been awakened by them at night. Maybe I'll have to increase some potassium in my diet.

@ Curt....holy cow!!! 300 mile bike ride??? You're my MG hero ;)

Vicki