My relentless running cramps and issues taught me that tennis and golf balls are good for the bottom of the feet. Do you know what is causing the cramping?

I do not know why , but i think its the Mestinon.

Ouch!

My cramps go from my feet to my fingers, some time they will lock of in a cramp when i use tools or pencils ect,,,even a time or to when i was eating with a fork.... strange stuff..

Have you considered calcium supplements?

When I get cramps its usually when I take too much Mestinon. How much Mestinon are you on? Cabbage7

Oh, I can;t tell you how much floor walking, hobbling I have done... Just last week off an on all night, both ankles right where the connect at the feet... uggg I also get the locking you speak of in the hands..
Annette

Ann just started having the foot locking. I was (trying) walking to the bathroom and the locking grabbed hold of my foot. What the blank
Blank was that I thought as I stood looking at non working feet.

I was thinking about the Alice in wonderland story and found many similarities to this disease. Chasing rabbit - chasing dreams,hopes, ect. Mad hatter tea party been there done that. Tweeteldum and tweeteldee- doctors who do not agree. Flowers that turn into butterflies are hopes and dreams we cannot catch. It makes me smile
and hope it gives you a chuckle too. Oh I forgot chesire cat smile-what we give to non MGers.

Mestinon most likely, but it could be low potassium, both mestinon and prednisone lower levels. You might want to review some of the discussions in the Links Group under "cramps and fasciulations." My worse cramps were from the mestinon wearing off. Dividing doses and avoiding high doses like Timespan that wore off unpredictably in the middle of the night have taken care of most of my problems. Then there are the PNH syndromes which are even rarer than MG and there is a link to those sites in the discussions as well.

Good luck, cramps are miserable and largely unrecognized by doctors as part of MG, b.

When I am on mestinon I get cramps like yours. When I am off it (only prednisone) they almost all disappear.

thanks for all the info guys , I take 60mg of Mestinon 3 times a day and 20 mg Prednison 1 time a day 500 mg of metforman 2 times a day and Levothyroxin 0.05 mg 1 time a day and 10,000 mg of vit D 3 times a day... So i need to investigate Calcium and Potassium .....

I empathize 100%. I too cramp up, feet taking strange positions, hands looking like claws if i have to cut a difficult piece of meat etc. anf boy does that hurt!
I take calcium and potassium supplements but that does not seem to make any difference (I also eat a banana every day for potasium).
I am on 40mg 3x/day Mestinon, 2000mg Cellcept/day and 40mg prednizone/day.
Heaven only knows which are symptoms ans which are side effects!

I think I'm going to watch Alice in wonderland again .. It might give me some way to rationalize with this CRAZY condition!

I have the same cramping in my feet/ankles and hands. I have discovered that if I take one potassium tablet (99mg-over the counter strength) and two Leg Cramps tablets (I bought these at Walmart in the vitamins sectoin-they are homeopathic. I take these at bedtime.) per day the cramps are significantly better.

I used to wake up with them every night several times, but now I almost never have them. It might not work for everyone, but it works great for me.

I also take Mestinon 60mg 3-4 X/day, Prednisone 20mg and Imuran 50mg.

Kelley

I had leg cramps long before I knew I had MG or took Mestinon. I take 1/2 cup of water, 1 tablespoon each of honey and apple cider vinegar every nite and I don't wake up with cramps at all. I hardly have them unless I don't take my little drink. You can google this. Good Luck. Barbel