Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Going through treatment here in Houston. The high temps during the day have been 94 to 102. The pool water has also been warm - 86F+. Mostly the pool has been OK in the evenings when the air temp is below 85F. We recently had a bunch of rain that lowered the pool water temp. When I got waist deep tonight, I felt my heart start beating faster and was having some minor difficulty breathing. Thought that I might be going into Crisis. Being the smart guy that I am I decided to get out. It also brought on some pain in my legs.
Any one run into this or am I being too sensitive?
Thoughts?
hi entirely agree with domore4. i swim as a form of pt, it is relaxing, envigorating, i do not encourage to swim in water hoter than normal temp.
due to the fact that will get you weaker in your movements,
also yes drink some electrolites, you will need them, and when
you feel tigher take a brake.
i have been a swimmer all my life and i do enjoy it in moderation, also i would suggest that when you take a shower you do not use hot water, use barely worm as i not the best for our mg. condition
best of luck
Andre
Being too sensitive huh?
I don't think folks with MG can be too sensitive. We are always teetering on the edge in the balance of meds to control MG, the side effects and MG itself. I don't think that folks with MG should be trying to power through things, or ignoring symptoms. As a scientist, I liked to try to figure out cause-effect type connections with these type of symptoms, by experimenting and varying the conditions slightly, just like we did in the research lab.
When I had some odd reactions to a glass of wine while visiting a friend, I didn't give it up, but instead when I was at home in a controlled situation tried various amounts of alcohol. One day I tried a small amount without problems. Another day more, and as I tried the different amounts figured out that if I drank more than a small glass, it somehow messed with my functioning for things like driving. And with that knowledge, I just gave it up while on prednisone and mestinon (I thought maybe it was the medications and alcohol).
You could try doing something like taking showers or sitting in the tub at various temperatures to see what happens. Then when you think you feel changes, measure them by pulse rate and BP yourself and see if you can figure it out on your own if the event is a one-time fluke or repeatable all while waiting to see a doctor too if it happens regularly.
I think I figured out the constraints of my activities pretty good by trial and error with small doses of activity, an ongoing process as our own MG changes and our meds change. I thought learning about my symptoms was a way of dealing with them. Understanding is part of how we control our lives.
Good Luck
Russ
Good suggestions. :-)