Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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bear57 01/21/2013

Where I live has started to get very cold and my muscles have been very sore and stiff lately after going outside and doing some things in it. I know how MG effects it during the summer by taking all of your energy was wanting to see how the cold may effect some of you. Thanks

Bear

deleted_user 01/21/2013

My body loves cold temperatures except that I am more likely to get Rsynaud's in winter, though prednisone seems to have put an end to Raynaud's.

deleted_user 01/21/2013

PS (It was -10 degrees Fahrenheit when I left to work this morning.)

deleted_user 01/21/2013

I do better in cool weather. Cold has not bothered me so far, although, I didn't go outside with the super cold here in MN today. I like 20s -60s, warmer seems less comfortable.
I like it about 60 in the house and my wife much warmer. She is going through cancer treatment, so she gets control of the thermostat for now ;-)

bweeds 01/21/2013

bear,
I have similar problems in the winter, Raynauds, too. Shivering can use up energy, as well as the heat. b.

becwithkids 01/21/2013

It takes me way too long to "recover" when I get cold.
I don't know which affects me more, but hot and cold BOTH do!
The air quality is also terrible here in Utah right now (another thing that does not help)
Stay warm-ish ;) and well!
Love, Becca

Barbel 01/21/2013

I always have achey muscles when the temp turns cold. I have for many years. We moved from a very cold climate to a warmer one, but I still have aches when the temp dips into the 40 s or 50 s. I remember my last cold winter, I felt like I was eighty years old. I was So stiff and sore the whole winter. We r all different, that s for sure.

Cabbage7 01/21/2013

I have always had pain in cold or hot weather . I have arthrities which makes it worse in the winter. I get very stiff. I like summer better.Cabbage7

trlrider 02/03/2013

I was warned about both cold and hot weather when I was diagnosed. I had a lot of problems with the cold in Northeastern Ohio last January so we move to Florida. The heat here hasn't bothered me.

limpnoodle 02/04/2013

I have more pain and stiffness during cold weather, but I breathe easier then. The heat saps my energy and my breath.

cgreens 02/04/2013

Like the cold weather.

Cold weather where I am at in CA is 40-50 degrees. It can get colder though and that is too cold for me and MG. As long as I have a jacket, I am good to go. I take walks every AM break at work. I miss being able to run like I used to, but I never really enjoyed running just to run. I can't soak up the scenery as much! Let me run while playing basketball. That I can do for a couple half court games.

Having said that, I feel best between 60 and 80 degrees. Spring is just around the corner and I don't have allergies...bring it on!

deleted_user 02/04/2013

I was also warned about extreme weather. Utah is pretty extreme hot and cold, however, I do feel the MG is easier to deal with in the cold weather. The RA though, not so much

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