Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi...
I'm in need of some advice... I was diagnosed with generalised severe seronegative disease 7months ago and was started on high dose steroids and azathioprine (and mestinon). It's been quite a complicated treatment rollecoaster so far...
I know it can take 9to 12 months before the azathioprine can start working. Snce increasing the dose a 2months ago and having had plasmapheresis done last month my liver function tests have gone a little off.
My options are to stop the aza and retry after a few days or to try a different immune suppressant... My neurologist has suggested cellcept.
Can anybody share their experiences with cellcept because I'm really torn between holding onto the azathioprine and trying cellcept with all it's side effects.
Thanks!
Jo
I'm in need of some advice... I was diagnosed with generalised severe seronegative disease 7months ago and was started on high dose steroids and azathioprine (and mestinon). It's been quite a complicated treatment rollecoaster so far...
I know it can take 9to 12 months before the azathioprine can start working. Snce increasing the dose a 2months ago and having had plasmapheresis done last month my liver function tests have gone a little off.
My options are to stop the aza and retry after a few days or to try a different immune suppressant... My neurologist has suggested cellcept.
Can anybody share their experiences with cellcept because I'm really torn between holding onto the azathioprine and trying cellcept with all it's side effects.
Thanks!
Jo
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I am on cellcept and I like it. I believe it is helping. I have been on predisone but I am tapering off right now. I have been on cellcept for 6 months now.
Ann
Better days ahead,
TJ
Are you on steroid and meting as well? Are either of you seronegative?
I am sero positive. I have done one full rd of IVIG(I had to push back my MG progression) after I started cellept as a monotherapy for a few weeks, and I take mestinon. I have never taken anything else. I have been on cellept for ten months. Basically nothing changed in my blood counts. At first a little low, but it has evened out and improved to be well received it seems, and is effective. It started showing signs between 4-5 months, and I look forward to where I will be after 1 yr and 2 yrs. We do have people here seronegative taking it. Perhaps you can hear from others and their experiences.
Good luck to you!
CellCept has fewer side effects than Imuran, so if it works for you, that's what you should take. It MIGHT not work for you, though. I was on 2000mg/day for 18 months and kept getting worse. I switched over to Imuran and saw results after 6 or 7 months, to the point where I almost never need Mestinon. I still take 5/3mg of prednisone on alternating days, but that dose is too small to do any real damage.
I was a severe myasthenic, so you might experience even quicker/better response than I did.
I hate MG more than I hate drugs so I might not be your best guide.
Curt