I am on 1500mg Cellcept a day. when I moved up from 1000mg to 1500 I had light headed feelings and trouble concentrating on what I was doing. I called my Dr and was told that even though Cellcept was tested on an empty stomach, that I was to take it with meals. I also stopped taking it at the same time as Mestinon, although I don't know if that helped, but the feeling went away. Will

Well never thought about taking the two at different times I may experiment with that idea. Man this sure does get more complicated guess I will get me another pill box one for even hours and the other for odd hours. Thanks Will still going to call the Doctor but that was good advice.

I am on 2,000
I take 1000 when I get up on empty stomach and 1.000 before I go to bed
It has really helped me and I have had no problems with it at all.

Bear, I got a pill box with 5 large slots for each day. I found it at Frys drug for a couple of bucks.then because I had problems missing dosages I got a watch with 5 alarms that vibrated. As I have little hearing ability
Will

I take 2000 a day, 1000mg twice a day and have the nausea,muscle pain you speak of. The longer I'm on it( 8 months now) the worse these get.

Asking my doc about trying 500mg 4 times a day next visit. Tried it a few days and it helped but plex cut back just now and afraid to change too much at the same time...

Let me know what your doc says. Id really appreciate it.

Jeannie

Thanks Will, may have to look in on one of those watches myself.

Jeannie I am going to call them tomorrow I sure will let you know what they say so far most of what I hear is wait and see but I know they are trying just hard to know what to do I guess. I am going to ask about some blood work think that might be a good idea. I have been on cellcept for two months and some days it isn't pleasent really to be honest forgot what a good day was not to complain. Thanks

complain here all you want
dump city if necessary
dump all you want
Ann

I felt better after about a year or so on cellcept and prednisone and thymectomy.
I kept calling doc because I thougth prednisone was making me worse...He said hold on.....you aren't out of the woods yet.
Eventually I felt better(year or so later). Not saying this is your situation....it is just that this disease is wierd, weird, weird. I did gradually improve but it apparently takes a long time for benifits.
Just something to keep in mind.

Watch made by Casio, cost about 30 dollars. Will

Thanks Ann, that is what I am reading between the lines when I talk to the Doctors just hang in there give it a little more time. Still going to call the Doctor tomorrow just wish one time they would tell me your a Big ole boy suck it up that would make me laugh.

I will look the watch up Will thanks you are all good friends.

bear, You make us all laugh, and that is good medicine. b.

I take 1000 around breakfast and 1000 around dinner. I don't have to take with food, but I have quite a bit. I take mestinon randomly and it can be taken with cellcept also.

Taking it with food may lessen or slow the effectiveness, but it is fine to do so.

Cellcept is to be taken at least eight hrs apart or there will be issues.

Good luck

Hi Bear,
I had some nausea, no muscle aches, when I first started cellcept. I started taking it with food and that all cleared up. Now I take 1000mg twice daily with no stomach issues related to cellcept.

Has your doctor been doing frequent blood work to watch your counts? If not you definitely need to get in for blood work. Your neuro should be watching this for you. I have blood work every three weeks to watch all counts as they can be too low on cellcept. In fact, last week my RBC's and WBC's were both too low. You don't want to be walking around with a white count that is too low.
Cathi

If your white counts are too low, do you reduce the dosage?

Cathi, No she doesn't take blood so I am going to see my family Doctor tomorrow and see if they won't take blood just not feeling well several issues I believe it is blood related though. Came home from work today not a good day as we say here.

Bamboolilly, I am starting to do that sometimes it is difficult to know what to do you hope you will at least get to feeling better and it just gets worse or the same and the Doctors say give it some more time oh well. I called my Neur. she has not gotton back with me yet hopefully today sometime. Thanks you all.