I have been on it for about a month and a half so far I have found my appetite has changed I used to like coffee now don't care for it much. Some foods sound good and some just don't I have not gotten sick or nothing it is just it doesn't sound good. I have been really dizzy and not feeling well my neck hurts but I think that was me getting off prednisone I have been on that since the first of the year. I wish I could say something more but that is what I have noticed and most on here had no problem with cellcept. Good luck
Bear

When I first started taking Cellcept about 2 months ago I got a real slight headache but it went away. I am so anxious to get off Predinsone that I will put up with these small side effects. Will

Thanks Bear and Will for your information. I seem to get every side effect on whatever new medication I take. Maybe this time I will be bless and want have to deal with the side effects. I would love to get off the prednisone and begin to chew and swallow without difficulties, if Cellcept could do that it would be great. Cabbage7

Hi Cabby
I have been on cellcept for almost 8 years. The only side effect I have is being almost normal, I still get a little double vision when tired but thats about the only symptom I have. I haven't taken a mestinon in a couple of years. Be patient, it took me over 9 months to notice any big change in symptoms, but I was also tapering down pred at the same time. I didn't have any side effects from cellcept at all, and I was taking at one time 3500 mg / day. I hope it helps you as much as it has helped me.

Terry in PA

I know what you are saying Cabbage7 about side effects what a ride it is always something. But with all the friends here we will all hold together and support one another we will be alright. You take care of yourself hopefully cellcept will get us close to normal if not normal without side effects.

been on it for 2 years
I think I am better because of it. No problems from my point of view.

I love cellcept, when I first started it my stomach was a little upset for the 1st month. But I will gladly take that for the benefits I have had with it. Hope it works well for you.

Thanks Will, Ann,Adamrach and Terry you'll have helped me make the decision of trying Cellcept. I hope all is well. God bless. Cabbage7

Do you have to be on Predisone 1st?
My Neuro just put me on Predisone because my symptoms came back worse after being on Timespan since June. I don't want to be on Predisone & would like to just go straight to Cellcept.
Any advise on this? Right now my symptoms are bad with dble vision & swallowing & eating issues. I can't hardly work it is so hard with constant fatigue too!

I am on cellcept as a monotherapy. Never Prednisone. Results for cellcept monotherapy are great,but small sample sized. Because it takes longer to kick in, I did a round if IVIG to push my Mg back. I also took a lot of mestinon to combat symptoms. Two years later I await remission. Down to 120mg of mestinon or less a day with excellent strength compared to my worst. I don't ever want to be that helpless again. I was pretty bad, perhaps a lower class IV on the scale to V. I was the worst case my neuro had treated in her young career. She had seen worse in her understudy work of course. An example of improvement is walking very gingerly and tired after a quarter mile to being fine after five mile hikes. No pushups to 20 pushups. Cellcept has been great.

I am on Cellcept and prednisone - 4 years. Both have helped me tremendously. My neuro does not want to take me off prednisone because he feels it is helping me to stay as strong as I am.
Bear57, my side effects are very similar to yours. Food doesn't sound good or taste good, except for sweets - ugh! My neck hurts quite often, especially if I have talked a lot or laugh a lot. I love to laugh so I hate this part. I don't know if it's from Cellcept or the MG.

I am on Cellcept and prednisone - 4 years. Both have helped me tremendously. My neuro does not want to take me off prednisone because he feels it is helping me to stay as strong as I am.
Bear57, my side effects are very similar to yours. Food doesn't sound good or taste good, except for sweets - ugh! My neck hurts quite often, especially if I have talked a lot or laugh a lot. I love to laugh so I hate this part. I don't know if it's from Cellcept or the MG.

I started cellcept on Friday so far no problems but its still early so I am hoping it works better than the methotrexate.

Thanks Petrilynn, Let me know about your progress while taking Cellcept. I will begin in January. This will give me an ideal as to what to look forward too. I would love to get off Prednisone. God bless you and hope you will get stronger.Cabbage7

I've been on Cell Cept for 2 weeks and I'm wondering how quickly people starting seeing some results. I've read that it can take months to achieve full results, just wondering if anyone has seen anything quicker.