How much CBD are you taking?

I've been taking 10-12 drops a day of CBD classic that I purchased from Bluebird Botanicals. It turns out to be about 4 mg/day. I put the drops in a teaspoon and then put it under my tongue.

Thanks!!!

Which manufacturer did you get it from? There's a lot of them online lol

Hey! Just checking in. How are you feeling now? Is the CBD oil still effective?

Do you think it can take the place of Prednisone? I was feeling so good last September and down to 2.5 mg a day of Prednisone and I stopped it. Five weeks later I had a flare of double vision that lasted 4 weeks and I went back on the Prednisone immediately. I am now down to 5 mg a day and sometimes skip a day. Take a Mestinon once in a while, but not very often. Please keep us posted as to what your neurologist says, especially if he feels you can go off Prednisone. Might be worth a try to see what happens. Can always go back on it if you have to.

CBD works for many things but you have to read labels many oils use fillers. I am careful with where things come from. Mine is from a Kentucky farm and pure.

Here's an update to my original post over a year ago. I have learned more about CBD and THC and have added a small amount of THC, 3-6 mg, to my daily dose of CBD, 6-10 mg. My primary reason for taking it has changed. About 6 months ago I developed chronic back and hip pain. The CBD/THC reduced the pain significantly. My Neuro had prescribed Lyrica but with all the side effects i decided instead on Cannabis and I'm glad I did. It has helped somewhat with my MG. I need less Mestinon but continue with Prednisone, 15mg/day, and an IVIG every 4 weeks.

Robt111, thanks for the update. Gabapentin exacerbated my MG symptoms. If my neuropathic pain returns, CBD/THC will be an option. Also - it is possible that CBD/THC will be helpful for MG patients who have shingles pain since many of us have problems with gabapentin (generic Neurontin).

A friend of mine uses cbd to treat headaches and insomnia

Hi,
I can't speck much on CBD oil, but I have been consuming THC for many years with my MG. It does not affect my MG at all. It helps me sleep and reduces my stress a lot. I have taken breaks, consumed large amounts daily no difference to the MG.
No person is the same.
Prednisone, Mestinon and Cellcept keep me going and the THC helps me deal with these better.

---olaf

Cbd really helps people cope with a number of problems. My aunt has a very hard job both physically and mentally. Cbd helps her cope with insomnia, which she suffers from due to constant stress. I am an athlete and cbd helps me cope with severe pain after I was injured. I don't smoke or drink, but I am quite aware that cbd is a drug. Some even turn a blind eye to this before competitions. You can read about it here https://xflnewshub.com/extra/why-doesnt-the-xfl-test-for-cannabis-like-the-nfl/ and it's cool that the judging panel understands this, given how much research has been conducted on this topic. I hope that people will soon lose their stereotypes about this.

I am a recovering alcoholic and drug addict and was very concerned about taking CBD or THC either separately or together. I was diagnosed 2+ years ago with MG and have been sober for almost 20 years.

I did try CBD oil, in a variety of doses, and it it didn't seem to make a difference in my day.

I also tried cannabis, with a variety of CBD and THC strengths. I found that the combination helped me to feel "Brighter". I do use a small amount daily, usually in the late afternoon. It seems to provided some additional energy and reduce stress. I have discussed my small usage with my PCP and Neuro. Neither condone the use, as both are VA physicians, but also feel that the minor usage does not interfere with my med regimen - IVIG monthly, Imuran, Prednisdone, and Mestinon daily.

The usage of CBD these days is popular in the treatment of all kinds of things but it's effect varies among people. Some have wonderful results others have little to none.

Scott

For this alcoholic in recovery, I was also very concerned that the usage might lead me back to alcohol usage but this has not occured.

I did a fair bit of research regarding the effectiveness of cannabis specifically related to neuromuscular disorders and autoimmune disorders but there is not much research out there. The US government has not allowed cannabis research so data is scarce in both application(s) and dosage.

If CBD works for you more power to you. My own experience was that I wasted a lot of money that resulted in no change to my MG symptoms. (Yes, I used a reputable company nationally recognized). The only positive was a very mild decrease in menopausal hot flashes and that decrease wasn’t sufficient to warrant the cost.