Well, I had the persantine and had a very difficult time breathing felt like I was going to pass out.. At the time I had it done did not realize it was something that we should not do. Now I know, so glad you posted this.
Good luck to you.. Annette

They put me on a monitor for 27 days, did an echo and an echo with stress. I was on the treadmill for a very very short time due to the fact that my heart rate went up very fast since I cannot exercise like that with MG anymore. The test was fine and then I lied down for the ultrasound part after the exercise portion and my heart went into tachycardia above 160. Then it came down and went up again. They said it was 'normal' and sent me home.

After the test, my heart rate stayed above 120 for 2 hours so I called in and they said I had 1/2 hour for it to come down or go to the ER. It came down on its own. All the tests still came out 'normal' in that it was normal sinus tachycardia they kept finding over that month on the monitor and I kept showing 'body under stress' signs. Constant tachycardia at the slightest thing: raising my arms, washing my hair, walking one flight of stairs, standing up and it would pop and run.

They wanted to put me on a beta blocker or a calcium channel blocker, both are relatively contraindicated in MG, so NO! I ended up going back on mestinon which controlled it. (mestinon can have a side effect of bradycardia and control blood pressure in POTS). They still don't know why but it controlled the blood pressure spikes I was having too. And then I found out 8 months later, when I got off omeprazole that IT was causing both the tachycardia and the bp spikes. Now I have no heart or bp issues thankfully.

I hope that helps and everything turns out well for you....debra

I really love this support group. The timing of this discussion is absolutely perfect. I have an appointment with my cardiologist next week for an annual checkup. It's good to learn what he can't do before he tries to do it. Last time I had my check-up I hadn't been diagnosed with mg.

I listed MG and all my other health issues on the Cardiologist's forms. I had an echo and a stress test, complete with the meds so I didn't have to spend much time on the treadmill. I don't remember what they gave me, but I didn't have any real problems, other than shortness of breath from the little walking I did. I've been taking losartan potassium and have to go back soon for another echo. I always make sure that no matter what kind of doctor I see, they know I have MG and they understand that I must be careful with medications. I also talk to my Neurologist and ask him if I need to be cautious about something if I'm not sure.
Best to you.