I was on vacation last week and experienced the muscle burning sensation you are talking about. I almost freaked out, it felt like my thigh muscles were on fire...the more i walked the hotter it felt,. I take potassium supplements because the liquid Mestinon acts like a water pill on me. I called my Nurse and she said i was overworking my muscles, that i had reached the maximum and was pushing myself, the burning sensation was letting me know i had had reached my max and needed to sit and rest for awhile so the muscles could relax and keep going.
Her comment made me realize i cannot go as if nothing is wrong with me even though i have the energy to do more, my body cannot keep up and i need to listen to it. (i walked over 7 miles a day on vacation,(site sighing) and it did me in, when i got back to texas) ..i guess there is nothing to do but stop and rest when you get that burning sensation. Let me know if you find out another solution because i dont like to slow down...lol

I have a burning sensation on the bottoms of my feet and sometime they hurt and stiff when I walk.

Thanks Norma! I know what you mean, slowing down is a real bummer. My problem is that ignoring my body and pressing on is the only way I managed to carry on working for so many years and now I have set up a bad habit of overdoing things. I am no longer able to work and spend a great deal of time in hospital. My burning comes on even with walking a very short distance though. I have been very ill this year though and have already had 4 crises so perhaps because my MG is so uncontrolled very little is too much for me. Was hoping for a quick fix. If I find one I will certainly let you know.

Hi Memegigi! You say the underneath of your feet burn. Are you by anychance on Cyclosporin? I had those same symptoms on the cyclosporin and was told it was causing a peripheral neuropathy. Maybe you should chat to your neurologist about your burning feet. wishing you happy feet!

No, I am not on cyclosporin. Thanks though, mostly happens at night and my feet are a little painful and stiff in the mornings.

The way muscles work is - if you don't use them, you loose them.
By all means if you can walk, and work out. Do it. Exercising keeps your muscles healthy, it improves heart health, blood circulation and cleanses the lymphatic system and so much more...

Plan out your exercise about an hour after you take your Mestinon so that you're at your best for a good productive work out. Rest when you need to. But keep going when you can. Try to have a good sweat too. Dress yourself if sweat shirts and long pants if you want to, if you're comfortable with that. The lymphatic system is the most important way to cleanse the body - and toxins are released through sweat (that's why antiperspirants are no good - but that's a different story)

Please stay active. Norma, I applaud you for walking so much. For the most part, the burning in the muscles sounds like they just had a work out. I LOVE that feeling when the muscles are burning. At my weakest I walked with my husband, arm in arm but just kept going.... Just make it exciting and fun and trust your body ;) good luck.

I am so sorry for your pain but at the same time so impressed that you can walk 7 miles. WOW!! on a good day i am doing good to walk 100 feet.

I know the feeling wifeUSCGmore! Sometimes every step feels like an effort! My pain comes on very quickly, even with a walk from the bathroom to the bedroom. It seems to be getting a bit better these days though which is a blessing. Isn't Norma's 7 miles an amazing achievement!