Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
You need to go to er
I had pneumonia and it was so bad I can't even remember it.
I was in ICU
Go go go to er
When you arrive you need to say you have mg and feeling breathing problem.
I think I can promise they won't send you home.
Whichever of these lists you find most helpful, keep with you. It is especially important to have when visiting the doctor, and all your regular physicians need a copy for your chart. There is a phone app that is available available through the MGFA that covers more than just contraindicated medications.
Please get in touch with your neurologist and find more appropriate medication and treatment. Most infections this time of year are viral, will not respond to antibiotics, and antibiotic treatment will make it harder for you to recover. Although some MGers on line have been able to take z pac, it is one of the worst offenders.
I am so sorry you are experiencing this. My last cold scared me into eventually getting diagnosed by someone who was willing to give me medication for my MG. Please let us know how you are doing, and if you have to go to the ER, take one of these lists with you. b.
here is a link to the phone app, I also added it to the discussion on medications and myasthenia
http://mymg.myasthenia.org/home b.
You will be comfortable.
I think we need to check each thing ourselves> We need to be our own best advocate.
About 14 months ago I had a very similar dx in my lungs and wasn't able to go to my normal Physician and to make a long story longer was given Levaquin which is a definite no no for us mgers . There is a black box warning that specifically says not to be administered in any capacity to patients that have Mg.
I gotta tell you this really got my Irish up that it was given to me and the only way I found out is that my wife goggled Levaquin and discovered. Bottom line is that we have to be our own advocate and never let your guard down..Cj