Sorry to hear you are having so many eye problems. MG does cause double vision, eye lid drop and other symptoms related to the eye muscles tiring. The light sensitivity, focus trouble and other eye symptoms certainly sound like more than just MG is causing the problems.
You should see an eye specialist and find out if something else is happening at the same time. If mestinon isn't helping, it makes it more likely that something else may be wrong.
I got my MG diagnosis from the eye specialist -- walked into the emergency eye clinic at Mayo Clinic for double vision and after a few checks the eye doc told me I had MG and sent me to the neurologist. I had regular appts with the eye specialist during the first year as my vision was changing and I tried prisms and different prescriptions to try to keep my eyes functioning good enough to function.
There are many conditions that can cause eye problems and MG can coexist or aggravate some of them.

Good Luck

I know the snow issues thank goodness no snow in my new england area this yr. Some people have talked about patch on eye in past posts , also I close eyes and put ice or very cold washcloth for awhile. Hope you have safe travels!

Driving problems led me to knowing I had mg and driving still causes me more issues than anything. Even riding causes eye issues because there is so much visual stimulation. Driving also uses so many muscles that causes my whole body to weaken.

1/19/16 update

I ended up going to the neuro yesterday and he started me on 20 mgs of prednisone. I have an appointment in 3 weeks again and he plans on moving me up to 30 or 40 mg at that time.

Hopefully this will help my vision problems.

Thanks for all of the replies.

Steelplayer

Smart move
That was recommended to me but I didn't do it right way and then I had a crisis.
Oh well

I am having the same issues with my eyes and especially the left one as well. I am taking 60 mg of prednisone now and the eyes are still a problem.. I see the Neuro next week.

I have read on here that it takes a year for a new normal, I was just diagnosed in Dec of 2015.

Thanks for sharing!

How active are your eyes. What do you do with your eyes?
Do you play video games or anything like that?
Are you doing too much with your eyes?
Does your eye improvewithrest.
There was a time I could not read, drive or even watch tv. There were days I had to be in bedroom in dark to keep my eyes from blurring etc.

I have used cold clothes when overtired eyes and increase font size on devices. Sunglasses in bright daylight also a must!

Hi just wanted to add that I had severe light sensitivity and blurred/double vision in the beginning. The docs seemed puzzled by the light sensitivity. My eyes have always been a bit sensitive to light but are now back to normal. Vision is also much improved especially early in the day. I did some plasma exchange, IVIG a few times and ongoing cellcept mestinon so I am really not sure if a single drug was responsible or just better control of the disease. Hope that helps.

For the double vision, I first used an eye patch ... then my eye doc added the "prisms" to my eyeglasses and this was a much better, less ackward solution. On the eye fatigue and irritation, as others have said, it was drops, rest and an overnight gel type drop. Sounds like ur neuro doc is still working on the diagnosis stage of things as you haven't started on immuno suppressants yet. I did everything I could to hurry up appointments and lab results. I agree with other comments posted here, the diagnostic stage of things is so imp.

I had a lot of eye problems in the beginning. The light sensitivity could be due to the fact that your eye muscles are so weak, they are becoming dilated and allowing more light to come in.
I could barely see anything for a while and also had pain.
I didn't know it at the time, but I had a predisposition to narrow angle glaucoma, so this eye weakness caused the angles in my eyes to close, allowing pressure to build up inside my eye. I was also on high dose prednisone, which only made it worse.
I would recommend you see an ophthalmologist ASAP, to be on the safe side.

I bet the Prednisone helps you.

Thanks everyone for the replies and help. I had not checked the site for a little while and I was surprised that there had been more activity on my last post. My job requires some travel and I had been avoiding it for the past month but I finally broke down and made a 6 hour drive down to the Miami FL area. It was raining both days but that was kind of good as I didn't have to deal with light sensitivity. I had a little bit of trouble on the drive back though as my right eye decided it was also going to get in on the action. I do have glaucoma with field vision loss especially in my right eye so if I can only have one eye working well, it needs to be the left.

My MG first started with the right eye lid drooping which led to the diagnosis. The right eye eventually seemed to correct itself over the time period and the problem with the left one took its place. Now It seems that its the right eyes turn again or even a little of both. What also seems odd is that sometimes I wake up with the eye problems as well. I thought that the muscles were meant to become "refreshed" with rest.

Anyway, I am still on 90 mg's of mestinon three times a day and now a low starting dose of prednisone once a day. I go to the neuro in a week and I believe that he will be "upping" the prednisone. I also have an appointment with an ophthalmologist in a week to look at that end of things. My other main MG problems have been loss of jaw strength, nasally speech at times, swallowing issues and sometimes some general body weakness.

I only have about 2 more years to work before retirement and I hope that the increased medicine and treatments will get me to a point that I can accomplish this.

Thanks for the support.

Steelplayer

Don't know how much of a difference but I see neuro-opthmal dr. Very extensive eye tests since I have double vision in beginning.I etc. Better now but he is now my mg Dr for everything few spec in my state also I love his smarts and sense of humor and nurse

Thanks group for the support.

The vision problems have really been a challenge for the past few weeks . I was under the thoughts that things would be temporarily better after rest but that's not the case. I now wake up in the morning with my right eye almost totally closed and the left one about half open. I take 90 mgs of Mestinon and 20 mg of Prednisone as soon as I get up and it seems to help a little. My only other main issues other than sight at the time are jaw strength, and some swallowing and speech issues.

My wife has been very supportive of my condition. She has been researching what resources are available to me and it looks like she has me lined up with a top shelf specialist at the University of Southern Florida located in Tampa. . I have my first appointment in a couple of weeks. I need to get things under control if I am going to try and work for a couple of years yet.

My local neuro has not been very aggressive. He has just slowly been increasing the Mestinon level and he started me on prednisone 2 weeks ago.

That's what's happening as of this time.

Thanks
Steelplayer