Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Antibiotics are difficult with MG anyway and you may be fine but you need to be very cautious because it could exacerbate your MG in a serious way too.
It is on the drugs to avoid list (due to causing possible exacerbations) on some sites but not on others....
Art chick, did it put your daughter in Resp. Crisis ? or how did it affect her. I hear people saying one needs to be careful, but I am still not sure what this means.
In my case the azithro didn't cause crisis just flared my symptoms a bit. Other antibiotics like the quinolones and Ketek have caused crisis for me but just thought you should know that you could potentially have problems with azithromycin. Some aren't affected by it at all. Perhaps if the infection will respond to a different antib, it is best avoided? The infection will also flare your symptoms though so it's a difficult one.
Ange
She does have respiratory symptoms as part of her MG, as do I but she got through it with a little oxygen after pulmonary function testing and without treatment. As time went on and she rested and she got farther away from the last dose of the antibiotic, she got better though and she came through it. Her diaphragmatic function is a huge issue and was the key to diagnosing her.
You really can not say how one person is going to be affected on a medication....sometimes it is absolutely a non-issue (esp. if you are stable right now). If there is something that you could take that is NOT on an avoid list, you might want to choose that instead though.
debra
If I didn't have so much faith in myself, I would have gotten a new primary doctor(pcp) already. I have this one trained to pretty much do as I ask in regards to tests etc. I can email him anytime and see him on short notice. For now, I am ok with having a "yes sir" pcp. He didn't diagnose me of MG(i did), but at least he acknowledged it to say that it might be the case and got me tested.
(Glad Christo is here - for all of us!)
What a wealth of knowledge, on this support page.
Well. If it makes anyone feel better? I just fired my PCP today.
I guess - that would be - me!
(That feels better.)
So one never really knows, that I think is the most frustrating thing about MG, is that it is alway different and so many variables. Thanks again for all the input
Regards
Christo
My neuro said that sometimes we have to take certain antibiotics and just have to treat the exacerbation if it occurs so I am to always check with her before beginning any antibiotic treatment so that she is aware.
Hope the treatment clears up your ailment:)
~sherry
Always good news when we get away with something that's supposed to cause trouble. Hope the rest of the course goes as smoothly. b.