Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Actually, this will be my fifth time, but like I said the first since my MG diagnosis. The last time, however, I remember having to stay the night, as I was feeling extremely weak and demanded staying overnight, which was no problem. My regular Cardiologist has talked with the Doctor who will be performing said Angiogram, and I will also be providing them the contact information of my Neurologist, who is 100 miles south. I know that it's more of a 'twilight' sort of drug, but yes have had some slight breathing problems at my weakest part of the day.
I was only a step or two recovered, from the throes of severe MG symptoms, when I had my angiogram.
I had no apparent problem with the contrast dye, the angiogram, or any anesthesia.
(However, after the angiogram, I was shuttled between two hospitals, for weeks and weeks of opinions, because no two cardiologists could agree on what was wrong with me. As a result, I am being treated ''medically'' - with cardiac medicines.)
A strong sidenote:
If possible - do not let the catheterization team allow a resident ''student'' to perform: either the catheterization, or the angiogram.
Tell them to save the ''student'' for someone - who does not have MG.
My catheterization was performed by a greenhorn resident, who made typical greenhorn goofs, at the incision site for the insertion of the catheter. This resulted in excessive bleeding and bruising, and a wound that easily took 3-times the normal healing rate (2 weeks or more, as I remember).
Tell them to save the student - for an otherwise healthy 45-year-old!
Bottomline: my angiogram did not seem to exacerbate my MG, even though I was so weak, I could not transfer myself, from gurney to exam table, and vice-versa.
- Ross
Erica, I do not have a BIPAP machine, though my wife a CPAP. I have already alerted them to possible breathing issues, and that I will be also bringing my Mestinon with me, as I'm on 180mg every three hours. The actual procedure won't last long, the entire process of arriving, preparation, procedure, and final release certain will span that time.
Good luck Bill and will be thinking of you. Please let us know how things turn out.
-sherry
That's certainly an option that the same doctor offered to me last time, and I did stay. Not sure what time I started last time, but this time check in time is 8:00 a.m., but still I'm sure it'll be after lunch by the time they'd be ready to let me go. But, it still sounds like you and Snowbelt recommend the staying.......
I was supposed to get a blood draw for a test at my last doctor visit. They had a student and I got nervous so the pro stepped in and it was sooo smooth. I don't think anyone pulled blood so easy from me.
Holding you in the light, Bill, waiting for word, b.
I was pleased that I had taken literature for them to read about MG, and medications I could not take, as it really gave them insight into the disease and what my special needs are. Also, having discussed my need for taking my Mestinon every three hours helped too, as I did to take my 10, 1, and 4 p.m. doses there.
So, while I still have the same symptoms leaving the hospital as when I went in, after their not finding any more problems with my heart, I will seek out a Pulminary Doctor. Cathi has been encouraging me to do so, but now Dr. Weiss (my MG doctor), as well as my cardiologist.
Now to add on a pulmonary Dr....our list of doctors seems to grow:-(
-sherry
Yup, adding another doctor! That's what my reaction, when Cathi had originally mentioned it to me several months ago. 'Heck NO', I don't want another doctor, but with the growing chest pain, tightness, etc, I guess it's time to consider it, now that my heart isn't the issue this time.