I do my PT at home - only two or three times a week - only if I am not going through something else (cold, stomach flu, allergies etc.). I tried going to PT but by the time I got dressed (wore me out), traveled (20 -30 minutes each way) etc., I was whipped out before I began.

I also found it challenging to find a physical therapist who understood MG. Finally I found a therapist that came to my house and we together worked out a plan. Which - if all conditions are good - I do two to three times a week and help a great deal - just have to pace myself and not push!
Have a great evening! Mary

l haven't done formal PT in years,but l do remember a lot of what l was shown from then.l am more likely to do 5 mins of set exercises all through the day now.l know my upper body is most affected so l work on that more than legs etc.

It can be hard when just hanging the washing can be a real chore so if on a good day l can do 5 mins with even just 1kg weights l'm very pleased with my self.if over the course of the day l can do that 4 times woo hoo!.

l used to have my exercise bike in the living room and during my fave tv show l would sit on it and pedal my heart out during the ad breaks...l wasn't being too much a couch potato and l knew l only had at most 3 mins to go hard at it then l got a rest...hubby thought it hilarious .

l'm a great believer in when you can ,do what you can ...but when things are a bit iffy,don't risk it.

I am going to give it a try next week, but don't know at this point if I will be able to keep it up.
Like Mary452 said, usually, by the time I get ready and get somewhere, I am worn out and ready to go home. But I have been having some spurts of longer lasting energy since I had rituxan, so I am hoping to take advantage of that and gain some strength in my poor limp muscles.

I had it after my hospital stays and they helped a bit.
Then pt made me worse.
They just don't really get it.

I recommend Rehab for anyone rather it is at home or at a rehab facility. Important to always remember to take it slow. Even when you are feeling like a great day and you want to push it, keep to your program.

I have learned from my various types of rehab that I would too often try to push myself. It is the hardest thing to learn to keep it slow and not expect fast results. Very important to communicate with the therapist how MG effects you and how your sessions are going.

Listen to your body during and after you sessions. You will learn what is working or not working. My therapist and I both know my sessions vary depending how I am doing.

Bruce

I am hoping to get an understanding therapist because I saw a speech/swallowing therapist at this same facility and she actually researched my disease and was very careful not to overdo anything in her attempts to help me. Turned out swallowing, tongue and other oral exercises only exacerbated weakness, so I had to quit, but I am stronger now so hoping for better results.
It would be nice to have someone come to the house, but I think part of my recovery is being able to get out and go somewhere again.

When I did PT they were careful to break the exercises up into small groups because the more I did the weaker I got. They also had me space them out when doing them at home. Due to the distance driven I did better doing instruction there and having rechecks but doing the main work at home. IT is really important to space your exerises and only do a few at a time. Good luck and hope this helps! hugs, Marie