cellcept takes months to begin to work, according to my doctors. Its job is to "calm" your immune system in an attempt to stop your body from attacking itself.

Your mestonin dose isn't very high, either. Re-post another question in this group asking people what doses they take. You'll find that its all over the map. I take at LEAST one, 120 mg. time release mestonin, PLUS 3 to 4 x 60 mg tabs. It absolutely helps me with my droopy eye if I take enough.

Hang in there. It takes awhile to find YOUR best treatments, because everyone seems to respond so differently.

GOOD LUCK

I think more mestinon may help.
I took 60 to 90 every 4 hours.

Just try 60 every 4 hours and see if it helps.
Mestinon. Can be taken as needed. Not like the other drugs we take.

I agree it sounds like you might need a higher dosage. I was on 30 mg three times a day plus 1 180 mg extended release overnight which wasn't nearly enough. The new neurologist doubled the dosage and I do feel better. Not perfect but definately better. My eye is still droopy when tired or stressed. Good luck finding the right dosage....just persist and make sure your doc is listening to you. If he isn't find one that will! Best wishes

I took 60mg of mestinon x3 a day but I am slowly moving up to 90mg x3 a day. I got an increase in my Mestinon because my muscles were still tired & I still had a droopy eye lid that twitched.

Also when I took the 6mg Mestinon x3 a day and 20mg of prednisone every day I felt great and I didn't have a droopy eye lid or a twitching eye at all.

I began taking Cellcept about four months ago when I was in Stanford University Hospital for a major Myasthenia crisis. At present I am taking 120 MG's of mestonin a day. I am out of crisis and my MG symptoms have dramatically subsided.

Two things I've learned over the past half year is to find a neurologist who has knowledge and experience with MG, and if your MG symptoms are troubling call your doctor and tell him/her what you're experiencing.

Hope you find some relief, Bob

To all of you, thank you so much for your input.

I will increase my mestinon to 60mg 4X a day. If that doesn't help lift the eye lid, I'll put it up to 90mg and see what happens.

My first neuro told me I could take up to eight 60mg tablets a day. I tried that when I was first diagnosed, but the side effect were terrible. I spent most of my day in the "John".

This time I'll try to control the side effects with some diarrhea tablets. I just thought cellcept might be a sure cure for the droopy eye lid.

Last fall I saw an eye surgeon about tacking up my eye lid, but she said, I should wait until the Myasthenia became more stable. I didn't think Myasthenia ever became stable.

Thanks again for the advice on increasing my mestinon. The wealth of experience on this website is priceless.

Ask your eye doctor about prism glasses. They saved me, I couldn't watch TV.

For what it's worth, I tried 90mg of Mestinon 4x/day and didn't like the roller coaster ride. I felt much better taking 60 mg every three hours during the day and later on added in a timespan at night. Remembering to take it every three hours is a challenge, so I have an alarm on my cell phone that goes off to remind me. I think the people in the offices near me think that I get a lot of cell phone calls :)
-Pat

I got positive results for drooping eyelid and double vision from acupuncture, with electrical stim around the eye. After the first session, the eyelid stayed up for :10, after the second session, 2 hours, after the third session, 4 hours, etc. After six sessions, it stayed up all day, and the double vision went away. Best of luck.