Not to scare you . DO NOT consume intoxicants with Mestinon at the least within 6 hours. I am back on the wagon. i used to drink a glass of wine or any alcohol for that matter 30 - 60 ml and that led me to feel drowsy and i used to sleep this was my way of avoiding sleeping pills. Recently i discovered that it was really bad the last time i did it since i almost passed out and threw up second time ever after drinking alcohol. I also think you should start monitoring your food habits and what works and does not for you. In my case thus far I do not take the medication after 5 PM else I cant sleep. i have talked about this with my doctor and thus far it works. also the days when I know I will have to work longer I do take an extra dose of the medication. Again I am not a doctor just a patient like others. I also noticed that ever since I had my thymectomy I feel much better than before and the dosage of my medication actually reduced. surround yourself with fun-loving people _ very important. carry a note on you that says you have MG in case of emergency people treating you should know as certain types of anasthesia can cause your breathing muscles to relax and revival will be difficult.
sorry for the long message. hope you feel better without the Hic! Hic!

All of our bodies are different and sometimes it can be an adjustment type of thing.

It seems for us the body is now "over sensitized" having MG and kind of "over reacts" to anything we put in it. It could be possible that besides alcohol content, wine affect us more than say beer because of it being more acidic. That could have an effect on Mestinon. When I drank wine, I didn't like it as much as beer (never have), and I believe I did get more red and irritated etc...When I drink, I am careful. I have been out drinking at a bar/restaurant and at home. I have had a beer when eating and about with no problems. I just cannot drive drunk and I know my limits for that and stick to it unless home and no worries.

Usually anywhere from 1-3 beers is plenty for me. (Water in between helps out even more I think) I haven't had a hard alcohol drink since MG onset. It took me well over a year after onset before I even drank a beer. I don't drink the cheap stuff either. I am finding Newcastle Beer goes down very nicely for me. So does Guinness and Heineken beer.

All things considered, beer is fine with me, just rendering me with some slight exacerbation at times like the doubled vision mentioned by Tristyn. It passes...

Enjoy!

I feel like when I drink I get "drunk" much faster. I can have one or two and be all loopy when before I could handle it fairly well. I also find with wine or anything fairly hard the next day is very rough. So more or less I have pretty much quit drinking, because I never know how I will be affected. Plus I can't take meds with alcohol and those are important.

I used to drink socially. But after being diagnosed and being on this medication, I cannot drink without becoming extremely sick. And it seems like the most minimum amount does a number on me, so if I drink now, its just one drink because I am too scared to drink anything more!

Wow, I must say, thank you for all of your responses- so helpful. I used to be a social drunker back in my early 20's, but now I can't seem to handle it anymore. When I spoke to my regular MD about it, then my Neurological opthamologist, then my neurologist, they ALL TOLD me that drinking should not be a contraindication with the Mestinon, or MG....but apparently they don't know any of the information that you guys have all just shared. I loved to go out and have a couple drinks with a couple of friends, but I guess those days are over too! Thanks again, all!

No more drinking alcohol for me either. It's not the same taking all these medications so I quit.

This will probably get censored but it is on the topic of having a health problem. My husband has had several heart episodes (open heart, etc,) plus diabetes. He loved his liqour and started drinking earlier .used to be 3:00 then 12:00. If I had not been here he would have died. We had dinner and I went back into TV room to check on him. He was passed out with vomit on shirt. Could not get him awake,etc.EMTs could not get him out of chair as he had no muscle control. Long story short he stopped drinking. Good luck to all of you I understand the want and need to imbibe but is it worth it? Karin

P.S. Hope this does not sound preachy or judgmental. - but having been through it with someone it's scary as heck. Karin

Lots of great replies! I will drink a toast to all of you ;-) (probably diet Seven up).

Hey all, I'm new here and don't yet have a confirmed diagnosis of M.G.
I believe this is what I'm suffering from for a couple different reasons. I started noticing fatigue in my eyes in the afternoon last year at the beginning of the summer. This was followed by increased exhaustion after exercising that has now forced me to stop most of what I was doing. My Dad had to have open heart surgery at the end of the summer and I was having trouble getting a deep breathe periodically when I was dealing with anything concerning the surgery and chalked it up to stress about it and sympathy pains, kind of like how a husband may feel when his wife is pregnant. Fast forward to this summer and I am now on sick leave due to many more symptoms including worsening of breathing, double vision that seems to disappear when I only look through one eye at a time, throat muscles become sore as well as inside of my throat and I start to lose my voice if I'm talking more than usual, or am under stress and crying. The reason I am wondering if this is what's causing the issues is since my early 20's I had this funny symptom when I drank. My left eyelid is almost impossible to keep open more than a quarter of the way and it's a symptom that has gotten worse over the years. I have started to notice over the last couple of years that this happens when I'm very tired.. while not as severe as when drinking. I wonder if anyone here noticed very early signs such as this before having signs that it's gotten bad enough to need treatment?
Sorry this is so long....I'm just becoming frustrated with my Drs who can't find anything on tests and keep asking if I am depressed or suggesting it's fibromyalgia and it's starting to take its toll on me.
Any info or personal experiences are greatly appreciated!

Hello, I just now joined this site. I was diagnosed with MG in August. My medicine is pyridostigmine bromide. I'm not much of a drinker anymore, but do like a beer or Guinness occasionally. So started drinking non-alcoholic beer - not bad. Doesn't seem to have any affect on my condition. I'm also on some heart meds.