Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Well I still don't know what I have, but the tests say not MG. Thank you for the support I've received here in this group during the most difficult of my experience so far. I've improved some but I don't know why. If I ever get a diagnosis of some kind I will share so that other may be able to maybe help others with this terrible experience. I think of you here and remember your challenges.
I went through a similar step just over a year ago. My neuro who gave me mestinon (great results!) said I didn't have MG as all other tests were negative. The folks here were wonderful and welcoming and encouraged me to hang around. Glad I did as it still looks like MG, likely a seronegative form.
So hang in there and keep searching for answers. We often have more than one disease at work and the overlapping symptoms keep the docs guessing. I'm on year 8 of strange, rare autoimmune diseases, likely four or five of them.
Flutebell
Good Luck and let us know what happens.
Russ