Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
HI All!
I have been busy with kids and work and treatments and am not on DS often - but I wanted to briefly tell you about a new steroid side effect for me since it took my docs a little while to figure it out.
Since diagnosis (11/2011) - I have not been able to come down too much on my steroids. Last Jan, I was diagnosed with bilateral cataracts from the steroids (I am in my 30's - so this was not due to age!) - so that was my present from my steroids in 2013.
It seems that 2014 has given me a ruptured tendon. Tendon ruptures are not uncommon with long term steroid use. At first, due to where the extreme pain was (mid-upper calf) - docs thought it might be a blood clot in my leg. I think we are all guilty of not moving as much as we should - so I thought that was plausible. Ultrasound didn't reveal a clot. I managed with asprin and moist heat. Pain continued for a week and then I was standing still and all of a sudden heard and felt a pop in my calf. I had an MRI done this week and I have had a complete rupture of my plantaris muscle. Apparently this muscle is not completely necessary - so I will be managed with conservative therapy such as exercises - and no surgical reattachment is necessary (I lucked out!!).
I just had forgotten that tendon rupture was a possible side effect - and wanted to share in case it might be helpful.
Here's hoping this will be my only steroid present of 2014. And maybe I will be off of steroids by 2015!
Love to all!
Nicole
I have been busy with kids and work and treatments and am not on DS often - but I wanted to briefly tell you about a new steroid side effect for me since it took my docs a little while to figure it out.
Since diagnosis (11/2011) - I have not been able to come down too much on my steroids. Last Jan, I was diagnosed with bilateral cataracts from the steroids (I am in my 30's - so this was not due to age!) - so that was my present from my steroids in 2013.
It seems that 2014 has given me a ruptured tendon. Tendon ruptures are not uncommon with long term steroid use. At first, due to where the extreme pain was (mid-upper calf) - docs thought it might be a blood clot in my leg. I think we are all guilty of not moving as much as we should - so I thought that was plausible. Ultrasound didn't reveal a clot. I managed with asprin and moist heat. Pain continued for a week and then I was standing still and all of a sudden heard and felt a pop in my calf. I had an MRI done this week and I have had a complete rupture of my plantaris muscle. Apparently this muscle is not completely necessary - so I will be managed with conservative therapy such as exercises - and no surgical reattachment is necessary (I lucked out!!).
I just had forgotten that tendon rupture was a possible side effect - and wanted to share in case it might be helpful.
Here's hoping this will be my only steroid present of 2014. And maybe I will be off of steroids by 2015!
Love to all!
Nicole
Annette
oh well....
it is what it is.
That is why this web site is so good.
Any mistake we make can be reported and I hope someone can gain from my mistakes.
Thank you.
Hope
I was on Prednisone for 7 months before I started to taper off of them. It took me 10 months to go from 50mg to none as of 12/27/2013.
Carole