Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
For the last few days have been "enjoying" a constantly running nose and a slight tingly throat. Doesn't feel like a cold but the nose is running constantly all of the time. Thoughts?????
Currently 420 mg/day of mestinon and 20mg/day of prednisdone.
- Nan
Will try a nose spray and see what happens.
I ended up having some odd problems while on prednisone including thrush and athlete's foot--problems I think my immune system would have deterred otherwise.
My practice was to head to the doctor if I had symptoms that persisted for a few days as being immune compromised can let us get worse rapidly.
If you have been using mestinon for months and this cropped up just now, I wouldn't just assume it is mestinon side effects. Be proactive on problems is a good rule for us. Although we like to think we can self-diagnose or get advice from friends, we do better to check with our doctor.
The difficulty is in trying to decide when to see a doctor. With MG, that decision point is moved significantly to earlier than normal!
Good Luck
Russ
As usual, I appreciate your input and comments.
The difficulty is in deciding when to bring these concerns/symptoms to my doc.
My nose seems to running less today. Went through a box of Kleenex yesterday.
If still running will contact my PCP tomorrow AM.
Problems happen when I had cough and it wore me out. Nice feeling when we survive it. I know lately that I think I have been over protective of myself. I plan on easing up a bit on myself and trying to feel more normal. I wouldn't worry till it made my lungs feel week. Simple cold meds from over the counter help me too.
I know how we can worry. I cut my leg and we just went on vacation. I never went in pool for fear of bacteria leading to infection. Any problem causes us so much concern cause we just don't trust our bodies.