Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I'e had OMG for a year...been on mestinon which has been only mildly successful in curbing droopy eyelid and double vision. Dr recommended IVIG, which I start next Monday--four hours a day for five days!!! (At least you can read, watch tv, eat and go to the bathroom while they're doing the procedure, so they say!) My question: what's been the result for anyone who's gone through this? Can you go off mestinon? Do you have to repeat the procedure every so often? Any after affects? Thanks.
Glad you are better!!!
Curt
My infusions have been pretty uneventful. But three weeks ago I had that happen AFTER my infusions (the first day when I got home and the second day when I was leaving the center). It felt like REALLY bad heartburn (took my breath away bad). It was scary and they could not explain why and told me to try a benedryl, which seemed to work.
This round I took benedryl at the beginning of my IVIG and four hours later both days and did not have that happen again.
I also had potassium infused prior to my IVIG all of these times and wondered if it was from that... I share your experience, but can't explain it!
Love, Becca