I have headaches at the base of my head/neck that I take gabupentin for. I also have terrific headaches of facial pain. Mine is Likely stress or fibromyalgia related. It doesn't happen everyday. Make sure you mention it to your doc. Could it be a side effect of any medicine that you are taking? Hug .

Check your blood pressure throughout the day, see if it is elevated at all around the time of your headaches. It doesn't have to be super high for headaches to occur.

I've always been prone to headaches, but after mg dx I get them often. I have a lot of weakness in my neck and when that symptom increases, so do my headaches

I had really bad headaches when my neck was weak. I got a neck brace (foam c-collar) that really helped, and made it a point to rest my head against something (back of a chair or similar) whenever I could. That really helped! Prednisone also gave me headaches at first; are you taking steroids? Hope you feel better soon.

I have had some neck weakness, not enough for my head to drop, but had pain and fatigue. I really feel so much better in that regard after the IVIG, but I have been learning that although the IVIG makes me feel better, I still have myasthenia and I still get fatigued if I'm not careful. Maybe that is the problem. I will try to check my blood pressure. I have a cuff in my medicine cabinet. That would surprise me because my blood pressure is always so low.

I have refused prednisone so far. It makes me crazy. (really!) I'm just on mestonin at this point. Having a thymectomy next month for a thymoma.

Thank you all, whenever I have a new symptom, I can never tell if it's MG related. Headaches really aren't on the "symptom list". I will talk to my doctor about it. I'm due to check in with him anyway.

You have all helped me so much.

Leslie

I get awful headaches daily. IVIG and rituxan both give me bad headaches. I also get them when my neck gets week. So basically between side effects and weakness I always have a headache. I always have pain meds in the house because sometimes they get really bad. I have ended up in the ER with the worst of them. Check with your doctor. Maybe they can change your meds some and that will help.

Headaches are not listed as a symptom of MG but they can be the side effect of other symptoms (such as neck weakness) or treatments. Many medications can cause headaches as does the effort that you put in to holding yourself up all day long.

I have headaches quite often and I also deal with weakness in the neck and shoulders. I also get horrible migraines which I have been experiencing for as long as I can remember. My mom tells me that they started when I was a toddler, due to a head injury. I've been to the ER more times than I can remember for relief of the pain and nause/vomiting.

None of it is fun. You just have to figure out a way to minimize the frequency and intensity and that is the tricky part. I would certainly mention it to your doctor and ask for them to do a headache workup. There could be other causes for them. Make sure you keep a log of your headaches though. It's important that you write down the date/time of each headache onset, duration of it, pain level 1 being hardly noticable and 10 being the worst you've ever felt. Also make a note of what kind of treatments you tried (Tylenold, sleep, ice, dark room, etc). Take that information in when you discuss it with your doctor. I work for neurologists that specialize in headaches so I know a thing or two about the information that they will need.

Good luck to you and I hope that the headaches go away for you Hugs!! Angie

Yes, I had headaches from the IVIG also. But its been a couple of weeks. Surely it's no longer that. Angie, great idea about a log. I do keep a myasthenia log, just doses, treatments, appointments and ups and downs. Maybe I will go daily on it for a while. Great idea, thank you.