Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I encounterd this once durring some breathing difficutly and it was horrible. Same thing, told I was just anxious and to breathe into a bag. He actually laughed at me and walked away. I Ended up being admitted the next day. It made a big impact on how I respond to my worsening symptoms now.
Im sorry you had such a horrible time. Glad you vent it out some here.
I endeed up getting a list of names of nueros who know MG for all the area hospitals from my nuero, just in case I am accross town or near by city and need ER attention. I haven't needed to use it but feel better knowing I can request they call someone in their hospital who my doc knows, know about MG.
Take care,
jeannie
I am so grateful my ER doc(neurologist) was good. He was sitting in the room with me in critical care and did exactly what was needed, Plasmapherisis, immediately. At least I believe that was the best treatment. I have a specialist at a large university hospital who said he would have done the same thing.
The guy who laughed, needs to have followup conversation with you, for the sake of others if ya know what I mean.
Unbelievable.
Ann