I am low on both Vitamin D and just found out on B12 as well. I am not diagnosed with MS yet, and some of the symptoms of these vitamin issues can mimic MS I found out. I had my brain MRI on Friday. So praying It is just because my vitamin levels were so low that was the culprit to all my symptoms. But I also read many people with MS have vitamin issues as well. But I am still hopeful, and yes it is very important to check them out.. Because if that is my issue, it has caused some really nasty symptoms.

B12 is needed for many things including MYELIN SHEATH synthesis. So yeah if you are deficient in this it can go toward MS symptoms.

D3, if high enough (70-85), in research has shown to reduce lesions compared to control groups.

Glad you got tested and are treating your deficiencies,
EP

The MS Society has been promoting it for yrs. I have been taking it for over a decade. Wish I could get level at 70-80. Mine is ~49. I am trying. It's very important. Thks fr reminder.

I take Vitamin D, my numbers jumped from 15 to 34 in about 3 months. Normal range is 30-100.
I tried taking B-12 and my symptoms got worse, so I stopped that.

What I can say is this... I am Vitamin D deff and I take it. I also took a hell of alot more for other issues. I continue it because of the deff.

If all you take and is concerned about it the Vit D then good for you. Cause the more pills you take for "symptoms of MS" may not always be good, I believe like any other disease you should work thru the issues as long as you can. In other words take vit D Vit b its the mental drugs you need to worry about

....just saying

christysms

I am not sure if I have shared with you the brand of Vitamin D I take. It is NatureMade Adult Chewable D3. It is easy to remember to take it daily. When my doctor told me that I should have 5000 i.u. a day, I was thrilled.

Good luck

I am just going to throw this out there.

Nutrient levels in bodies are based on a C--H--A--I--N of events. If one link is cut it affects outcome, here nutrient level.

Sun hits your skin-- skin processes a type of vitamin D-- it is transported to the liver-- liver processes D3 into a type you can use/store -- if parathyroid detects too little Calcium (ca+) in the body it transports D to the kidneys where it is processed again and the product is a signal to the gut to absorb more Ca+. Fat soluble vitamin D can also be absorbed in the gut from food like mushrooms/ supplements if fat is around.

So WHAT the heck am I talking about?
1.) If you don't get enough sun this can = low D
2.) If your skin has a problem processing UV-B sunlight into D= low D
3.) If you have a different problem in your liver processing D from skin into usable vitamin D this can = low D
4.) If you have problem with liver making bile resin to emulsify fat so fat & fat soluble vitamins can be absorbed & STORED ie D this can = low D
5.) If there is bad bacteria growth(inflammation) and/ or tight junction problems(they have found tight junction issues in MS participants) in Intestines then this can reduce absorption of Vitamin D supplements = low D.

So my point is that you need to have a healthy liver (see my posts on what research says you can do to help this key organ) & healthy GI, etc to increase and maintain nutrient levels such as D. If you are taking larger doses of oral D and levels do not increase or only creep up very slowly over 6 months or more then you may have to dig deeper as to WHY you can't improve this level. You may find the root cause may be contributing to other deficiencies in fat (needed for myelin production) and or proteins ( some needed to make myelin and in the case of MS this is abnormal).

Best wishes to all,
EP

Thanks for this post!

I just found out my Vitamin D level is 22. I am so annoyed about it because my neurologist is too busy to take the call and explain what it means and why it's so low (I'm a runner, so I'm in the sun a lot). My extreme headaches and vision loss haven't stopped and I have a cyst and white matter hyperintensities. I'm not sure how much more I need before I hit my limit and ask for a second opinion. Sorry, venting a bit.

I'm really just frustrated. I'm 36 and the neurologist flat out told me it probably isn't MS because I just ran a marathon. So I'm healthy. What?? A friend of mine has runners in her MS Support Group, so that's a really shallow justification. Has anybody else had such difficulties?

Following a blood test my doctor put me on a high dose of Vit D (25,000mu/month) and I notice a truly wonderful improvement with it.

I think that anyone considering this needs to have a blood test to make sure you are taking an appropriate dose. Mine is by prescription as you can't buy this high a dose over the counter here.

I also have my liver function monitored regularly.

I am Reply #4, here's an update: my vitamin D is now at 51! I take 1000 mg daily.

my Nero wrote a oder for vitamin d 2000 a day but a doctor at the hospital sense i had flap surgery he said it was too much and took me off . what should i do.

My Neuro has me taking 5,000 mg a day. I am at the low end of normal and he wants me higher.

Was low on vit d(24). After taki g 10000iu for 4 mos i am at 83. That is the level i want to maintain. Fine on b group vit